HHS Takes Additional Actions to Help People Stay Covered During Medicaid and CHIP Renewals

PRESS RELEASE HHS Takes Additional Actions to Help People Stay Covered During Medicaid and CHIP Renewals HHS Extends Special Enrollment Period to Help People Transition to the Marketplaces, Issues New Resources for Partners, and Publishes Guidance Reinforcing Key Federal Requirements Today, the U.S. Department of Health and Human Services (HHS), through the Centers for Medicare […]

“He died 4 days before his son was born.” Scott & Kelsey’s Vasculitis Story

Blog They never expected it. “Scott passed away four days before he could have met his son,” Kelsey, his wife, told me. “I am reminded every day. It hurts.” For several weeks, he had been sick: cough, body aches, fever, joint pain. Until one night he began coughing up blood and couldn’t catch his breath. […]

Finding a Way Through, Together

Blog Darrin White’s life has meandered. He was born in the Canadian province of Manitoba. His father was in the Canadian Armed Forces, so their family moved a lot—“roughly every 20 months of my childhood,” Darrin said. As an adult, he lived for “a stint” in Ottawa, another stint  in Halifax, followed by time in […]

Two Sides of a Kidney

Blog When you’re a nurse and have four kids under the age of seven, feeling tired can be par for the course. But Theresa Caldron’s fatigue wouldn’t go away and was accompanied by a host of other symptoms. Intrinsically, she knew something wasn’t right, and after two years of repeated trips to the doctor’s office, […]

Mom’s Determined to Take Back Control Over Daughter’s Vasculitis

Blog “I remember the day Addy was diagnosed with Stage 4 Kidney Disease. At the time, I didn’t know what that meant. I thought it was a death sentence.” It’s been over three years since Jen Wilson’s then-six-year-old daughter, Addison Grace, was told her kidneys were failing and that she had microscopic polyangiitis (MPA) vasculitis. […]

Call for Submissions

Blog The John Grube Foundation e.V., based in Hamburg, awards the “John Grube Prize” in honour of its namesake, who died young of granulomatosis with polyangiitis (GPA). The DGRH has been involved in the award since 2021 by appointing a board member to the foundation’s advisory board and providing a platform and a worthy setting […]