Reproductive Health

Minimizing Pregnancy Complications in Vasculitis
Recorded December 2022

The Vasculitis Patient-Powered Research Network (VPPRN).
The goal of the VPPRN’s research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis.

The primary objective of this study is to understand pregnancy characteristics and outcomes among women with vasculitis. The secondary objective is to assess the impact that vasculitis activity and medical therapy has on pregnancy outcomes.
If you are pregnant and have vasculitis, consider enrolling in our vasculitis pregnancy registry (VPREG).
Visit: www.vasculitisfoundation.org/vpreg/

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Fertility and Vasculitis
Recorded December 2022


The Vasculitis Patient-Powered Research Network (VPPRN).
The goal of the VPPRN’s research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis.

The primary objective of this study is to understand pregnancy characteristics and outcomes among women with vasculitis. The secondary objective is to assess the impact that vasculitis activity and medical therapy has on pregnancy outcomes.
If you are pregnant and have vasculitis, consider enrolling in our vasculitis pregnancy registry (VPREG).
Visit: www.vasculitisfoundation.org/vpreg/

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Vasculitis and Planning for Birth Control
Recorded December 2022

The Vasculitis Patient-Powered Research Network (VPPRN).
The goal of the VPPRN’s research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis.

The primary objective of this study is to understand pregnancy characteristics and outcomes among women with vasculitis. The secondary objective is to assess the impact that vasculitis activity and medical therapy has on pregnancy outcomes.
If you are pregnant and have vasculitis, consider enrolling in our vasculitis pregnancy registry (VPREG).
Visit: www.vasculitisfoundation.org/vpreg/

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Birth Control Options for Men with Vasculitis
Recorded December 2022

The Vasculitis Patient-Powered Research Network (VPPRN).
The goal of the VPPRN’s research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis.

The primary objective of this study is to understand pregnancy characteristics and outcomes among women with vasculitis. The secondary objective is to assess the impact that vasculitis activity and medical therapy has on pregnancy outcomes.
If you are pregnant and have vasculitis, consider enrolling in our vasculitis pregnancy registry (VPREG).
Visit: www.vasculitisfoundation.org/vpreg/

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Birth Control Options for Women with Vasculitis
Recorded December 2022

The Vasculitis Patient-Powered Research Network (VPPRN).
The goal of the VPPRN’s research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis.

The primary objective of this study is to understand pregnancy characteristics and outcomes among women with vasculitis. The secondary objective is to assess the impact that vasculitis activity and medical therapy has on pregnancy outcomes.
If you are pregnant and have vasculitis, consider enrolling in our vasculitis pregnancy registry (VPREG).
Visit: www.vasculitisfoundation.org/vpreg/

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This presentation will cover how vasculitis may effect women differently from men including the reproductive life cycle and hormonal impact.

Welcome and introductions. 0:17
Health-related quality of life issues for patients with vasculitis. 5:35
Impact on Women: Four dimensions. 8:07
Treatment of ANCA-Associated Vasculitis 8:24
Fertility and Cyclophosphamide. 10:49
The Effect of Vasculitis on Pregnancy 13:33
Pregnancy and Treatment. 18:02
Pregnancy and Biologics. 19:24
Pregnancy Tips. 20:23
Menopause and Cyclophosphamide 21:44
Menopause Tips. 25:53
Sexuality in Rheumatic Diseases 26:28
Sexual Dysfuction and Behcet’s Disease. 28:42
Vascular Impairment and Sexual Dysfunction. 29:43
Summary of key points on fertility and vasculitis. 31:10
Q&A: I no longer have monthly bloods taken because my numbers for ANCA don’t spike. Should I be concerned that I’m not being monitored? 32:48
Q&A: Is it common to feel extremely hot and overheated when I exercise. Is this common with vasculitis? 35:04
Q&A: How can EGPA affect menopause? 37:29
Q&A: Do you know what the long term effects are for the biologic, Q&A: Do you know what the long term effects are for the biologic XOLAIR® (omalizumab) 39:35
Q&A: Is pregnancy a concern for people with only minor symptoms of Behcets? 42:12
Q&A: Do you have any suggestions on how to gain weight when managing vasculitis? 45:07
Q&A: What are concerns with small cell vasculitis? 47:16

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After a vasculitis diagnosis, it often feels like you are navigating the unknown. But that’s when people living with vasculitis tap into their superpowers of strength, hope, and resilience – and they get connected to the vasculitis community. Meet our 2023 Patient Hero winners. Their stories inspire hope and help others feel less alone.
Watch their stories: https://www.vasculitisfoundation.org/vf-patient-heroes-2023-links/

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