Many Outstanding Questions Still Exist for Vasculitis Patients: The Massachusetts General Hospital Rheumatology Vasculitis Program Hopes to Find Some of the Answers

Vasculitis tends to present in a systemic manner, often affecting multiple organ systems. Clinicians should consider a broad differential (possible conditions that share the same symptoms) and think about the entire person—not just at the time of diagnosis but throughout their life as they face periods of remission and relapse. The Massachusetts General Hospital (MGH) […]

VF Applauds Ashton Kutcher

The Vasculitis Foundation (VF) applauds Ashton Kutcher for publicly sharing his experience and diagnosis of vasculitis. By sharing his story Ashton is raising much-needed awareness of these rare and serious diseases which affect people of all ages. The VF is pleased that Ashton Kutcher is doing well and bravely speaks about his symptoms with vasculitis.

Meet Dr. Adam Mayer: Fellow Physician in Adult and Pediatric Rheumatology at UPenn

Adam Mayer, MD, discovered his love for rheumatology in his first year of residency after having several meaningful and exciting patient cases with systemic rheumatic diseases. He has always wanted to care for the most complex and critically ill patients and vasculitis was a natural interest. Dr. Mayer began his four-year fellowship at the University […]

Introducing Our 2020-2021 VCRC-VF Fellow: Kinanah Yaseen, MD

Kinanah Yaseen, MD, was awarded the 2020 Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation (VF) Fellowship. She is currently a junior faculty member in the Department of Rheumatic and Immunologic Diseases at Cleveland Clinic. Her interests involve all forms of vasculitis, especially small vessel vasculitis including granulomatosis with polyangiitis (GPA), microscopic polyangiitis, eosinophilic granulomatosis with polyangiitis, […]

Introducing Our 2022-2023 VCRC-VF Fellow: Mohanad M. Elfishawi, MBBCh, MS

Mohanad M. Elfishawi, MBBCh, MS, began his one-year Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation (VF) Fellowship on January 1, 2022. Dr. Elfishawi will be working on several projects in giant cell arteritis (GCA) including investigating metabolic risk factors for GCA. In addition, he plans to study aortic involvement in patients with GCA and the risk of […]

Physician with GPA Continues Medical Career Despite Facing Obstacles and Discrimination

By Gary Salzman, MD (Edited by Nina Silberstein) A diagnosis of vasculitis changed my life, but I didn’t let it ruin it. Today, I’m a 69-year-old retired physician living in Scottsdale, Arizona, who mainly practiced Geriatric Medicine, but I was also certified in Internal Medicine, and Hospice and Palliative Care. I’m married but due to […]

UNC’s Multidisciplinary Vasculitis and Connective Tissue Disease Clinic Offers Patients Team-Oriented Approach to Care

Autoimmune diseases are complicated conditions that can impact many organ systems in a patient. Typical models of care with providers spread out in different offices can lead to delays in diagnosis and slow down treatment options, while confusing patients as to who is making the decisions. At the University of North Carolina at Chapel Hill’s […]

Twin Siblings Specializing in Vasculitis Are Working Together at KUMC

Kelly Liang, MD, and her twin sister, Kimberly Liang, MD, both joined the University of Kansas Medical Center (KUMC) in December 2021. Kelly is currently Associate Professor of Medicine in KUMC’s Division of Nephrology and Hypertension, and Kimberly is Associate Professor of Medicine in the Division of Allergy, Clinical Immunology and Rheumatology. The doctors hope […]

Co-Directors of Vanderbilt’s Vasculitis Clinic say it’s Critical to Have a Multidisciplinary Approach to Care

As we have come to understand that vasculitis can affect literally any organ system, the focus at Vanderbilt University Medical Center’s (VUMC’s) Vasculitis Clinic from the beginning has been on forging relationships with clinical collaborators from all specialties. They come from a variety of disciplines and have been called upon to help evaluate and manage […]

Rheumatology Fellow’s Current Research Offers Improved Guidance to Women with Vasculitis in all Areas of Reproduction

For women of reproductive age, having a family is a natural inclination, and one that brings great joy to them and their families. While complications can occur during pregnancy in women with vasculitis, there is little comprehensive, prospective data on the topic. Fortunately, current research offers improved guidance to these women in all areas of […]

2019 VCRC/VF Fellow Joins UPMC as Vasculitis Center Director

Note: Sebastian Sattui, MD, MS, completed his Vasculitis Clinical Research Consortium-Vasculitis Foundation (VCRC-VF) fellowship at the end of June 2021. Dr. Sattui was at the Hospital for Special Surgery in New York City for four years and during the first two years, he focused on his general rheumatology training. The last two years, he concentrated […]

Introducing Our 2020-2021 VCRC-VF Fellow: Alvise Berti, MD

Dr. Berti began his work in vasculitis while he was a medical student at Vita-Salute San Raffaele University in Milan, Italy. At the time, Dr. Berti recognized that vasculitis was not very well understood, and being both curious and motivated to further explore this group of diseases, he realized that he wanted to become a […]

First Pediatric Rheumatologist Awarded 2021 VCRC-VF Fellowship

Jessica Bloom, MD, MSCS, has been awarded the 2021 Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation (VF) Fellowship. Dr. Bloom is currently an Assistant Professor of Pediatrics at the University of Colorado- Denver, Attending Physician in Pediatric Rheumatology at Children’s Hospital Colorado in Aurora, and the first pediatric rheumatologist in the VCRC-VF Fellowship program. Her primary […]

PAN Patient Raises Vasculitis Awareness Through Flash Mob Dances in Washington State

In light of the symptoms and treatment options, a diagnosis of vasculitis can actually be a positive, life-changing experience for some patients. After 26-year-old Jessica Kent was diagnosed with polyarteritis nodosa (PAN) in 2015, she discovered a passion for working in healthcare and a greater appreciation of life. She learned to appreciate the little things […]

The Final Answer

July 27 Refresh. Refresh. Refresh.  As an intern, I combed through the electronic medical record each day, hoping to find the pathology reports for my patient, Grace (NB: name has been changed to protect privacy). Grace was a middle-aged woman who had presented to the hospital with a myriad of complaints. During my initial assessment, […]

Medical Education is a Core Value at UCSF’s Vasculitis Clinic

The uncommon or rare nature of vasculitis can unfortunately lead to delays in diagnosis and treatment. This is an important reason why ongoing medical education is essential. As more physicians learn about these diseases, better care can be provided for patients with vasculitis. Educating future rheumatologists and internists is a top priority at the University […]

Pinochle Night Brings Friends Together During Pandemic

By Fran Crotty My 85 year old mother splits her time between living at her Florida condo in the cool months and her Long Island, New York condo in the warm months. When in Florida, she plays in several bridge games each week. My brothers and sister have always been competitive in sports. I thought […]

A Family’s Personal Journey Through Vasculitis

In life we often find that while not every story has a happy ending, we can learn from others’ experiences and hold on to hope. In the context of the vasculitis journey, we can hope for an early diagnosis, better treatments, advanced research and, ultimately, raise awareness. This is the story of Javier M. Diaz, […]

VF Board of Directors Welcomes Caz Cazanov

In March 2019 we published a story about Caz Cazanov and her personal experience with vasculitis. After being diagnosed with eosinophilic granulomatosis with polyangiitis (EGPA) in 2017, Caz was treated with high-dose steroids and cyclophosphamide infusions, and spent three weeks in the hospital and in a multidisciplinary rehabilitation facility. She tapered off prednisone about a […]

New Vasculitis Program Opens at the Medical College of Wisconsin

Until now there were no vasculitis centers in Wisconsin. Many vasculitis patients there had to travel long distances to places such as Chicago, Illinois, or to the Mayo Clinic in Rochester, Minnesota, to find a specialist with a focus on vasculitis research and clinical care in their practice. To address this need, rheumatologist Michael Putman, […]

Fran Crotty’s Morning Routine: Prepare Inner Self to Create a Positive Start for the day

In April 2020, the VF ran an article about Fran Crotty, who was diagnosed in 1996 with granulomatosis with polyangiitis (GPA) and Crohn’s disease. Fran has managed to stay in remission for almost two decades and in the April article, she describes how faith and positivity have fueled her personal transformation. You can read it […]

Stanford’s Vasculitis Clinic Expanding Access to Care in Northern and Central California

Early in her medical training, Audra Horomanski, MD, saw several healthy young adults’ lives turned upside down by life-threatening vasculitis—and then saw the dramatic difference that could be made with appropriate treatment. Later in rheumatology training, she met many patients who had long delays in diagnosis because their symptoms came on slowly or they lived […]

Columbia University Irving Medical Center Creating Dedicated Vasculitis Center

Daniel DeMizio, MD, developed a passion for treating vasculitis early on in his career. He was taking care of a critically ill patient with vasculitis during the first month of his fellowship at New York-Presbyterian Hospital when he recognized that this family of diseases encompassed all that had initially drawn him to rheumatology. “Affecting nearly […]

For Yanique, it’s About Holding on to Hope

Yanique was just 9 years old when she was diagnosed with central nervous system (CNS) vasculitis—a rare inflammatory blood vessel disorder of the brain and spinal cord, which make up the central nervous system. It’s a serious condition in which the inflamed vessels can block the flow of oxygen to the brain, causing potentially life-threatening […]

VF’s First-Ever Virtual Pajama Party Benefit Brings Down the House!

Who knew how fun a virtual pajama party fundraiser could be? We certainly found out, when more than 250 members of the vasculitis community donned their favorite PJs and gathered with family and furry friends for an evening of online performances, touching testimonials, and messages of hope on Saturday, June 20, 2020. The sold-out VF […]

Dr. Eric Gapud: Giving Back by Furthering his Medical Training in Vasculitis

When Eric Gapud, MD, PhD, was in medical school, he was diagnosed with an autoimmune disease. As you might expect, he can empathize with the experiences of his patients, particularly those with vasculitis and anyone who has been diagnosed with a rare disease. A physician-scientist, Dr. Gapud is also an instructor of medicine on the […]

Fran Crotty Finds that Faith and Positivity Fuel Her Personal Transformation

Back in November 2013, the VF ran an article written by Fran Crotty, who was diagnosed in 1996 with granulomatosis with polyangiitis (GPA) and Crohn’s disease. In her own words, she “has come back from her challenges, only slightly worse for wear, yet filled with optimism, strength in her faith and a greater appreciation of […]

Dr. Rebecca Manno: Bringing Rheumatology Expertise to the US Virgin Islands

The US Virgin Islands (USVI) have always been a special place for rheumatologist Rebecca Manno, MD, MHS, because she and her husband, Nick Hoyt, have vacationed in the territory for the past 20 years. But after the two devastating Category 5 hurricanes in 2017 (Irma and Maria), Dr. Manno began learning more about the health […]

Q&A with Brandon Hudgins: Thoughts on Olympics Postponement and COVID-19

California Runner Finds Helpful Support Through VF and Brandon Hudgins

Art Diaz, a 49-year-old married father of two, embodies the southern California lifestyle of health and vitality. A native resident of Garden Grove in Orange County, Art works as a retail manager at Skechers, the lifestyle apparel brand headquartered in nearby Manhattan Beach. An avid runner, Art has spent many hours logging countless miles on […]

VF Young Adults Group Spearheads New Vasculitis Visionaries Podcast Series

As 2020 kicks into full gear, our VF Young Adults community has continued growing and coming up with new ways to build upon a successful 2019. Last November, we were fortunate enough to be honored in Kansas City for our efforts to raise awareness about vasculitis through a video featuring about a dozen young adults. […]

Kathy Olevsky: Enjoying Life in Remission from MPA and Pursuing Her Passions

After Kathy Olevsky was diagnosed with ANCA-associated microscopic polyangiitis (MPA) in 2009, it took her about a year to realize that she would never be the same person she was before she became sick. But when you read her story, you’ll see that this determined 62-year-old is not only surviving, she’s thriving. Kathy was a […]

Dr. Velma Mockett: Turning Pain into Passion and Purpose

Patients with vasculitis and their families may find it helpful to talk to a counselor or therapist to sort out the variety of feelings that can come with a diagnosis. Some may have a hard time accepting the disease; others may feel anxiety, anger, fear, sadness or even guilt about being sick because of the […]