Raise Awareness

Brandon Hudgins shares his dramatic story of being a professional runner while dealing with the challenges of vasculitis.

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Mate shares his story of being diagnosed with IgA vasculitis (formerly HSP) at the age of 17. He talks about his struggles of dealing with the uncertainty of what his future held. By sharing his story he hopes others will have less uncertainty and will know that things do get better. He credits his vasculitis journey with helping him gain a new sense of appreciation for life.

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India Rose and her mother share her remarkable story of finally being dosed with cryoglobulinemic vasculitis at the age of 19 after being told for years that her symptoms were a psychological issue. She shares how the support of her family gave her strength until she finally received an accurate diagnosis.

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Araya and her parents share her remarkable story of being diagnosed with ANCA-associated vasculitis in elementary school. She encourages kids with vasculitis to "not be scared" and that they will be able to participate in the things they enjoy. For Araya, that's gymnastics.

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Raila was diagnosed with GPA vasculitis as a teenager. She shares her remarkable story-including her struggles with appearance changes due to prednisone and wondering if she'd ever play soccer again-so that others may know that they will get through it and come out stronger on the other side.

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Annruth and John share how the Vasculitis Foundation resources such as support groups and webinars have helped them navigate Annaruth's vasculitis diagnosis.

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Recorded July 2023

In this inspirational keynote address that closed out the 2023 Vasculitis Symposium, Kathy Olevsky delivers a powerful story—her own journey of being diagnosed with vasculitis.

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Extraordinary Patient Story: Victor James

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2022 VF Patient Heroes: Spencer Ableman

Learn more about Spencer who is a 2022 VF Patient Hero.

Ordinary People – Everyday Heroes. When faced with a diagnosis the road ahead may look scary, but that’s when our vasculitis patients draw on their superpowers of strength, hope, and resilience. Here are a few of the many stories from our everyday heroes whose positive attitude and determination to fight back against the disease is incredibly inspiring.

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