Blog

The Right Doctor Changes Everything

“I was in the worst pain of my life. I was in tears. He dismissed me and acted like I was faking it.” When Stephanie started experiencing mysterious symptoms, some doctors called her psychosomatic. Until she found The One - the doctor who took her seriously....

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Poems from Our Community

Recently, twenty-five of our community members with vasculitis gathered with poet Jim Elsaesser over Zoom for a Healing Poetry Workshop. They spent nearly two hours talking, exploring, writing, and sharing in community. Several of the participants have offered to share their poems. May their poems touch your spirit and remind you:…...

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“Will I Ever Feel Normal Again?” How Jenna Lea Faced High School and Vasculitis

“Will I ever feel normal, again?” When Jenna was diagnosed with microscopic polyangiitis (MPA) vasculitis, she was still in high school. As anyone who’s ever been in high school knows, the pressure to fit in is high. In this story, Jenna shares her pain and her lessons from trying to…...

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Championing Vasculitis Victories: Art Diaz’s Choice to Advocate

Art Diaz, who’s living with vasculitis, doesn’t want you to feel sorry for him. But that doesn’t mean he’s not going to talk about what it means to live with a rare autoimmune disease. In fact, Art has been committed to raising awareness so that people living with vasculitis are…...

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Bestselling Book Series Author Boosts Vasculitis Awareness

Jane had worked in public policy and advocacy her entire career, including her current role as a senior policy analyst for a large health care association. But when she was diagnosed with vasculitis, she started thinking about health policy not just from a professional perspective, but a personal one. Living…...

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