Blog

One Mom’s Determination to Take Back Control Over Her Daughter’s Vasculitis

“I thought it was a death sentence.” When Jen’s 6 year old daughter Addy was diagnosed with Stage 4 Kidney Disease and MPA vasculitis, Jen felt helpless. Through three years of ER visits, hospital stays, and a kidney transplant, Jen grieved their losses. But as she began to embrace their…...

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My Life Changed When I Had a Stroke In College

Ingrid, a college student living with central nervous system (CNS) vasculitis, shared her story with the Vasculitis Foundation in her own words....

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Revelations: How One Woman is Emerging from her Vasculitis Gloom

Ever since her vasculitis diagnosis last July at age 67, Lupe has been going through a funk. A career-driven marathon-runner, Lupe now feels unmoored: who is she? When she looks in the mirror, she struggles to recognize herself. In this story, Lupe poignantly and courageously shares her attempt to come…...

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We All Deserve Kindness

Before Irene Tipton began her journey with (Granulomatosis with Polyangiitis) GPA, she had dedicated her life to helping others learn. First as an elementary school teacher, then an assistant principal, and then training other teachers, she used her gifts to connect people and ideas. In 2020, her world changed when…...

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“I Had No Idea If I was Going to Live or Die” – Alex’s Teenage Journey with Vasculitis

When Alex was diagnosed with GPA vasculitis in 2018 at the age of 16, he said it was one of the worst times in his life. Explaining his mysterious condition to classmates was “awkward” and often painful. As his face became puffy from prednisone, some classmates began to laugh at…...

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