Mental Wellness

A panel of people living with vasculitis share their experiences with how their sense of self shifted after their vasculitis diagnosis. While the path their life has taken is very different from what they imagined, they offer insight into how they have found new meaning and strength since their diagnosis.
Panelists: Brandon Hudgins, Art Diaz, Kathy Olevsky, Heather Moya, Stacey Ivitis, Jennifer Gordon

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A discussion about the emotional impact of vasculitis and strategies to cope with this autoimmune disease.

Welcome and introductions. 0:34
How do I balance my many roles as a mother, partner, working and managing my disease. 7:46
Good time management skills, and knowing your goals. 10:20
Be kind and patient with yourself, and the people around you. 12:34
Do you have ideas on how we can become better communicators with our loved ones? 13:29
What are your emotions trying to tell you? 16:04
Vasculitis is a disrupter. It changes the plot in your life story. 19:38
Recognize when you are getting overwhelmed. 22:31
What zone are you in? 24:53
Dealing with the uncertainity that comes with vasculitis. 26:23
How do I deal with having to ask for help, and not being able to do simple, everyday things? 29:12
Shame and living with a chronic illness. 30:33
Three essential things to manage vasculitis. 39:13
Vasculitis–my terrible roommate. 42:56

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Covering techniques from mindfulness to self care as a means of finding balance, non-judgment, and gentleness with yourself.

TOPIC TIMESTAMP
Welcome and Introductions. 0:15
Sara's background and vasculitis experience. 4:53
Thinking of success and failure. 7:15
How do I balance everything after a diagnosis of vasculitis? 8:54
Learn this word -- Lagom. 9:50
What you can and cannot change. Locus of control. 11:10
Langom choices while managing vasculitis. 13:23
The lesson from Kintsukuroi. Repair cracks with gold. 17:30
Vasculitis breaks things in your life. 19:16
Identify the gold in your life. 19:54
Feeling left out of family activities. 20:50
Being open and honest about brokenness. 22:49
How to begin... 23:42
Q&A: When did you bring your loved ones into the discussion? 29:09

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Living with a complex medical diagnosis can bring on stress in mind, body, and spirit. Join Molly in a session designed to support feeling better in the bodies we have right now! Participate in SomaYoga Therapy practices and take-home tangible tools you can use on a daily basis.
· Learn a series of simple seated chair-based yoga practices to soften the main stress reflexes/responses.
· Learn an easy stress and anxiety reset with practices from Polyvagal Theory.
· Tap into the tools of proprioception, exteroception, and interoception to strengthen a positive relationship with your body.
· Use gentle breath awareness practices and guided relaxation to build ease and resilience.

No yoga experience required. Make sure to have a steady chair and any support for comfort. Optionally have a place to lay down for relaxation at the end of practice. This class is a combination of education and chair-based practices that will build awareness, better function and more ease in the body and mind.

About Molly:
Molly McManus C-IAYT, E-RYT 500, somatic educator, ayurvedic health counselor, and ayurvedic chef offers private sessions, small group classes training and CE opportunities. Molly co-owns Yoga North International SomaYoga Institute, is co-founder of the methodology SomaYoga and Board President for the International Association of Yoga Therapists. Molly is inspired by the efficacy of Yoga Therapy to resolve human suffering and the ways it uncovers and supports our innate ability to thrive. As a person who manages the complex health diagnosis of EGPA herself, she shares from a platform of self-compassion and kindness and sees Yoga Therapy as the path to whole-being well-being.

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This is the first of a three-part series of webinars dealing with the impact of vasculitis on emotional health.

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This is part 2 of our three-part series exploring the impact of vasculitis on emotional health.

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Christina Heart is a Sound Therapy and Energy Medicine Practitioner and Reiki Master Teacher who has been involved in the Healing Arts for three decades. She was diagnosed with EGPA ten years ago and created a sound therapy program to assist her with her healing. In this webinar you will learn about sound therapy, sound therapy technologies, heart focused intention and heart centered breathing.

If you did not join us live and are listening to the recording, the link to listen to the Vasculitis Group Sound Therapy Session audio is: www.oneheartwellness.one/vfgroupsoundtherapy.html

he link to join Christina's Free Sound Therapy Program so you will be able to listen to ALL of the sound therapy audios anytime, at your convenience is www.oneheartwellness.one/try.html

When listening to the sound therapy recordings, it is recommended that you listen with a stereo headset or earbuds to receive the benefits of the sound therapy technologies.

Recorded March 2024

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Social worker, art therapist and Australian pioneer in the field of grief counseling and hospice/palliative care, Irene was diagnosed with Wegener’s Granulomatosis, now known as Granulomatosis with polyangiitis ( GPA) in 1998 at the age of 48. After three relapses over this period Irene is hale and hearty and attributes much of her wellbeing to creative arts activities and therapy. She completed a PhD in Expressive Arts Therapy at the European Graduate School in Switzerland in 2018 and published a book, An Arts Based Approach to Healing Loss and Grief: Working with Individuals and Communities Across the Spectrum of Loss in 2021 for Jessica Kingsley Publishers.

Irene shares some of her personal and professional experiences and introduces an art activity to promote self-awareness, resilience and well-being.

Presentation Slides can be viewed here https://www.vasculitisfoundation.org/wp-content/uploads/2024/04/Art-Heals.pdf ©The images in this slide show are Irene's intellectual property and should not be reproduced for commercial purposes.

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