Welcome to the VF Virtual Support Meetings page. Each month the VF holds online support group Zoom meetings for people with vasculitis and their families led by a moderator and a VF staff person. These meetings provide a positive, supportive forum where participants can share their challenges, celebrate their achievements, and learn from others how to navigate this disease.
We are updating our support group registration process. You can continue to register for September support group meetings using the current process. Registration information for October support group meetings will be available October 1st.
What opportunities do we offer for meeting virtually with members of the vasculitis community?
Look below to see the current list of VF virtual support groups.
You can register for any of these meetings on the VF Events page.
Find your virtual, vasculitis support system today! Participate in our weekly Zoom meetings to meet with other members of the vasculitis community. Meetings are held on Wednesdays at 11:00 am, 1:00 pm, and 2:30 pm Central and on Thursday at 11:00 am Central. Pick the time that works best for you. This meeting is focused toward people living with vasculitis. However, care partners, and family members are also welcome to attend.
Parents, join us monthly on the 4th Tuesday at 7:00 pm Central. Meet with other parents who have children with vasculitis to share experiences and offer support
Join us the 2nd Tuesday of each month at 7:00 pm Central to connect and share experiences with others who are living with vasculitis. This meeting is focused toward people living with vasculitis. However, care partners and family members are also welcome to attend.
We invite care partners and family members of people who have been diagnosed with vasculitis to join us on Zoom the 3rd Thursday of each month at 1:00 pm Central.
We all know that if you or someone you love is living with vasculitis it can be challenging, and finding connections with others who have “been in your shoes” can be just as tough. That’s why we’ve partnered with Inspire to create a safe and secure online community so you can find the support you or a loved one need when you need it most.
Q: Do I need to register in advance for the virtual support meetings?
A: Most of our support group meetings require registration. You can find out if the meeting you plan to attend requires registration, and find the registration link, on our Events page.
Q: What platform is used for these meetings?
A: We use Zoom Meetings platform. It is a free, easy, one-time download.
Q: Can I ask medical questions in these meetings?
A: We do not give medical advice in the meetings. Your healthcare provider is always your primary partner for all medical questions and decisions. We do share links to reliable online resources that can provide you and your healthcare provider with valuable information.
Q: How many people are usually in a meeting?
A: The meetings typically have between 12-15 participants. We want to keep them smaller so everyone has a chance to participate.
Q: What does it mean when there is a topic for the Virtual Patient Support Meetings?
A: Every other week during the first few minutes of the Wednesday meetings we present information about a specific topic that is important to people with vasculitis.
These topic meetings include a short presentation followed by time for discussion. The discussion during a topic meeting is not limited to the topic that was presented.
On open meeting weeks there is no presentation before the discussion period.