The Vasculitis Foundation (VF) offers online support group meetings for people with vasculitis and their families. VF online support meetings are led by a facilitator and a VF staff person.
The VF also supports a number of affiliated support groups. VF affiliated groups may meet either in-person or virtually and are run by volunteers from the vasculitis community. Some affiliated groups are open to anyone with vasculitis, while others are for people who have been diagnosed with a particular form of vasculitis.
All VF support meetings provide a positive, supportive forum where participants can share their challenges, celebrate their achievements, and learn from others how to navigate this disease.
Participate in our weekly Zoom meetings to connect with other members of the vasculitis community and build your support system.
Meetings are held on Wednesdays at 11:00 am, 1:00 pm, and 2:30 pm Central Standard Time and on Thursday at 11:00 am Central Standard Time. Pick the time that works best for you.
These meetings are focused toward people diagnosed with vasculitis, however, care partners and family members are welcome to attend.
Does work or other obligations prevent you from joining one of our daytime support group meetings? Join our evening online support group meeting on the 2nd Tuesday of each month at 7:00 pm Central Standard Time.
Connect with other members of the vasculitis community and build your support system.
This meeting is focused toward people diagnosed with vasculitis, however, care partners and family members are welcome to attend.
When your child was diagnosed with vasculitis it impacted your entire family. Find a community of other parents who get it.
Our online parent support group is held the 4th Tuesday of every month via Zoom.
Have you been diagnosed with Eosinophilic Granulomatosis with Polyangiitis (EGPA)? Join the EGPA Café Zoom Chats, held on the 3rd Thursday of each month at 7:00 pm Central Standard time. to connect with fellow members of the EGPA vasculitis community.
Our Teen Chat is for teens ages 13-19 who have been diagnosed with vasculitis. Join us for this virtual (via Zoom) informal chat with other teens who are living with vasculitis. Share tips, ask questions, voice frustrations, and support each other in the journey.
Teen Chats are held the 2nd Monday of every month at 7:00 PM Central.
We know that if you or someone you love is living with vasculitis it can be challenging, and finding connections with others who have “been in your shoes” can be just as tough. That’s why we’ve partnered with Inspire to create a safe and secure online community, so you can find the support and answers you or a loved one need when you need it most.
Q: Do I need to register in advance for online support meetings?
Yes. Our online support groups are limited in size to 15 attendees, and registration is required.
Q: What platform is used for these meetings?
We use Zoom. It is a free, easy, one-time download.
Q: Can I ask medical questions in these meetings?
We do not give medical advice in the meetings. Your healthcare provider is always your primary partner for all medical questions and decisions. If you have a medical question, we can and do share information about Vasculitis Foundation educational webinars, research studies, and other resources that provide valuable information for you and your healthcare team.
Q: How many people are usually in a support meeting?
Groups typically have between 10-15 participants. Registration is capped at 15, so everyone has a chance to participate.
Q: Can you describe a typical support group meeting?
After brief introductions, the group facilitator opens the meeting to discussion. Participants can share triumphs and struggles, ask questions, or just listen in. The group facilitator ensures everyone who wants a chance to share has an opportunity to speak. VF online support groups are facilitated by Dana, a licensed clinical social worker with a background in psychotherapy and medical/palliative social work.