Welcome to the VF Virtual Support Meetings page.   Each month the VF holds online support group Zoom meetings for people with vasculitis and their families led by a moderator and a VF staff person.   These meetings provide a positive, supportive forum where participants can share their challenges, celebrate their achievements, and learn from others how to navigate this disease.

What opportunities do we offer for meeting virtually with members of the vasculitis community?

Look below to see the current list of VF virtual support groups.

You can register for any of these meetings on the VF Events page.

Virtual Vasculitis Patient Support Group Meetings

Find your virtual, vasculitis support system today! Participate in our weekly Zoom meetings to meet with other members of the vasculitis community. Meetings are held on Wednesdays at 11:00 am, 1:00 pm, and 2:30 pm Central. Everyone is welcome!

Parents of Children with Vasculitis Chat

Parents, join us monthly on the 4th Tuesday at 7:00 pm Central. Meet with other parents who have children with vasculitis to share experiences and offer support

Patients in the Workforce Virtual Happy Hour

Join us the 3rd Tuesday of each month at 7:00 pm Central. Our virtual happy hour is for patients with vasculitis who are currently in the workforce, and offers a place to connect and share experiences.

Caregiver & Family Support Group

We invite caregivers and family members of individuals with vasculitis to join us on Zoom the 3rd Thursday of each month at 1:00 pm Central.

EGPA Cafe Zoom Chat

EGPA Cafe Zoom Chats are held on the 3rd Thursday of each month at 7:00 pm Central. Join the VF and host John Stadler on Zoom to meet with fellow members of the EGPA vasculitis community

FAQs about Virtual Support Meetings

Q:   Do I need to register in advance for the virtual support meetings?
A: Most of our support group meetings require registration. You can find out if the meeting you plan to attend requires registration, and find the registration link, on our Events page.

Q:   What platform is used for these meetings?
A:    We use Zoom Meetings platform.  It is a free, easy, one-time download.

Q:    Can I ask medical questions in these meetings?
A:     We do not give medical advice in the meetings.  Your healthcare provider is always your primary partner for all medical questions and decisions.  We do share links to reliable online resources that can provide you and your healthcare provider with valuable information.

Q:    How many people are usually in a meeting?
A:     The meetings typically have between 12-15 participants.  We want to keep them smaller so everyone has a chance to participate.

Q:     What does it mean when there is a topic for the Virtual Patient Support Meetings?
A:      Every other week during the first few minutes of the Wednesday meetings we present information about a specific topic that is important to people with vasculitis.

These topic meetings include a short presentation followed by time for discussion. The discussion during a topic meeting is not limited to the topic that was presented.

On open meeting weeks there is no presentation before the discussion period.

Patient Support Meetings Resources and Links