VPPRN Patient-Powered Research

Urticarial Vasculitis

Compared to patients with other forms of vasculitis, patients with urticarial vasculitis reported similar scores/ratings for fatigue, symptoms of vasculitis, and pain at the July 2023 check-in.  We do see higher numbers among patients with urticarial vasculitis on reporting of flares and active vasculitis.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

FLARES and VASCULITIS

Flare Reporting: Patients with urticarial vasculitis reported more flares in the past 6 months (47%) compared to 26% in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: Patients with urticarial vasculitis reported less fatigue in the past 6 months. 16% of patients with urticarial vasculitis reported no fatigue in the past 6 months compared to 11% in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: 24% of patients with urticarial vasculitis reported no symptoms of vasculitis over the past 28 days. This is similar to the 22% in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 28% of patients with urticarial vasculitis reported no pain in the past 6 months. This is comparable to the 27% in the VPPRN community.

Patients with urticarial vasculitis

Entire VPPRN Community

CURRENT STATE OF VASCULITIS

Current State of Vasculitis: 50% of patients with urticarial vasculitis reported their vasculitis as active. This is higher than the 24% reported in the Network.

Patients with urticarial vasculitis

Entire VPPRN Community