VPPRN Patient-Powered Research

Other/Suspected Diagnosis

Compared to patients with other forms of vasculitis, patients with other/suspected diagnosis reported similar scores for fatigue, symptoms of vasculitis, and pain at the July 2023 check-in. The differences we see are in the reporting of flares and members’ state of vasculitis.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

FLARES and VASCULITIS

Flare Reporting: Patients with other/suspected diagnosis reported more flares in the past 6 months (44% compared to 26% in the VPPRN community).

Patients with other/suspected diagnosis

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FATIGUE and VASCULITIS

Fatigue: 11% of patients with other/suspected diagnosis reported no fatigue in the past 6 months. This is the same percentage reported in the VPPRN community.

Patients with other/suspected diagnosis

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SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: 22% of patients with other/suspected diagnosis reported no symptoms of vasculitis over the past 28 days. This is the same percentage reported in the VPPRN community

Patients with other/suspected diagnosis

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PAIN and VASCULITIS

Pain: 30% of patients with other/suspected diagnosis reported no pain in the past 6 months. This is comparable to the 27% in the VPPRN community.

Patients with other/suspected diagnosis

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CURRENT STATE OF VASCULITIS

Current State of Vasculitis: 37% of patients with other/suspected diagnosis reported their vasculitis as active. This is higher than the 24% reported in the Network.

Patients with other/suspected diagnosis

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