VPPRN Patient-Powered Research

Granulomatosis with Polyangiitis (GPA)

Compared to patients with other forms of vasculitis at the July 2023 check-in, patients with granulomatosis with polyangiitis (GPA) reported similar scores/ratings for fatigue, symptoms of vasculitis, and pain.  However, there were differences in the reporting of flares and current status of vasculitis, with patients with GPA reporting fewer flares and a smaller percentage reporting active vasculitis. 

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

FLARES and VASCULITIS

Flare Reporting: Patients with GPA reported fewer flares in the past 6 months (17%) compared to 26% in the VPPRN community.

Patients with GPA

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: 13% of patients with GPA reported no fatigue in the past 6 months.  This is similar to the 11% reported in the VPPRN community.

Patients with GPA

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: 25% of patients with GPA reported no symptoms of vasculitis. This is similar to the 22% in the VPPRN community.

Patients with GPA

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 84% of patients with GPA reported no to moderate pain (scores 0-5) in the past 6 months. This is similar to the 81% in the VPPRN community who reported these same scores.

Patients with GPA

Entire VPPRN Community

CURRENT STATE OF VASCULITIS

Current State of Vasculitis: 18% of patients with GPA reported their vasculitis as active. This is less than the 24% reported in the Network.

Patients with GPA

Entire VPPRN Community