VPPRN Patient-Powered Research

Giant Cell (Temporal) Arteritis (GCA)

Compared to patients with other forms of vasculitis, patients with giant cell (temporal) arteritis (GCA) reported similar scores/ratings for flares, fatigue, pain, and members’ current state of vasculitis at the July 2023 check-in.  We do see a difference in the scores for symptoms of vasculitis, with a higher percentage of patients with GCA reporting no symptoms at all.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider. 

FLARES and VASCULITIS

Flare Reporting: 25% of patients with GCA reported a flare in the past 6 months. This is similar to the 26% in the VPPRN community who reported a flare.

Patients with GCA

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: 11% of patients with GCA reported no fatigue in the past 6 months. This is the same percentage reported in the VPPRN community.

Patients with GCA

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: Patients with GCA scored their symptoms of vasculitis lower over the past 28 days. 34% of patients with GCA reported no symptoms of vasculitis, compared to the 22% in the VPPRN community.

Patients with GCA

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 27% of patients with GCA reported no pain in the past 6 months. This is the same percentage reported in the VPPRN community.

Patients with GCA

Entire VPPRN Community

CURRENT STATE OF VASCULITIS

Current State of Vasculitis: 24% of patients with GCA reported their vasculitis as active. This is the same percentage reported in the VPPRN community.

Patients with GCA

Entire VPPRN Community