VPPRN Patient-Powered Research
Giant Cell (Temporal) Arteritis (GCA)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with giant cell (temporal) arteritis (GCA) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:
- Compared to patients with other forms of vasculitis, patients with GCA reported the following:
- less reported flares
- similar scores for fatigue
- higher percentage of patients with GCA reporting no symptoms over the past 28 days
- higher scores for pain
- a similar percentage of patients with GCA reported their vasculitis as currently active.
- Compared to patients with other forms of vasculitis, patients with GCA reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
FLARES and VASCULITIS
Flare Reporting: At the January 2024 check-in, 16% of patients with GCA reported a flare in the past 6 months. This is less than the 25% in the VPPRN community who reported a flare.
Patients with GCA
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2024 check-in, 10% of patients with GCA reported no fatigue, on average, in the past 6 months. This is similar to the 12% in the VPPRN community who reported no fatigue within the same timeframe.
Patients with GCA
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: At the January check-in, patients with GCA scored their symptoms of vasculitis lower over the past 28 days. 30% of patients with GCA reported no symptoms of vasculitis, compared to the 24% in the VPPRN community.
Patients with GCA
Entire VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2024 check-in, patients with GCA reported more pain on average. 20% of patients with GCA reported no pain, on average (score = 0; no pain). This is less than the 27% in the VPPRN community.
Patients with GCA
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: 23% of patients with GCA reported their vasculitis as active. This is similar to the 25% reported in the Network.
Patients with GCA
Entire VPPRN Community
