VPPRN Patient-Powered Research

Eosinophilic Granulomatosis with Polyangiitis (EGPA)

Compared to patients with other forms of vasculitis, patients with eosinophilic granulomatosis with polyangiitis (EGPA) reported similar scores/ratings for flares, fatigue, pain, and current state of vasculitis at the July 2023 check-in. Patients with EGPA, however, scored their symptoms of vasculitis higher than others in the VPPRN community.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.

FLARES and VASCULITIS

Flare Reporting: 27% of patients with EGPA reported a flare in the past 6 months. This is similar to the 26% in the VPPRN community who reported a flare within the same timeframe.

Patients with EGPA

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FATIGUE and VASCULITIS

Fatigue: 12% of patients with EGPA reported no fatigue in the past 6 months. This is similar to the 11% reported in the VPPRN community.

Patients with EGPA

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SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: Patients with EGPA scored their symptoms of vasculitis higher over the past 28 days. 12% of patients with EGPA reported no symptoms of vasculitis compared to 22% in the VPPRN community.

Patients with EGPA

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PAIN and VASCULITIS

Pain: 81% of patients with EGPA reported no to moderate pain (scores 0-5) in the past 6 months. This is the same percentage reported in the VPPRN community.

Patients with EGPA

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CURRENT STATE OF VASCULITIS

Current State of Vasculitis: 24% of patients with EGPA reported their vasculitis as active. This is the same percentage reported in the VPPRN community.

Patients with EGPA

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