Cryoglobulinemic Vasculitis (Cryoglobulinemia) VPPRN

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with cryoglobulinemic vasculitis (cryoglobulinemia) compared to the Network as a whole.  Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:

• • Compared to patients with other forms of vasculitis, patients with cryoglobulinemic vasculitis reported the following:
    • more flares
    • higher scores for fatigue
    • higher scores/ratings for their symptoms of vasculitis over the past 28 days
    • higher scores for pain
    • a higher percentage of patients with cryoglobulinemic vasculitis reported their vasculitis as active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.