VPPRN Patient-Powered Research

Cryoglobulinemic Vasculitis (Cryoglobulinemia)

Compared to patients with other forms of vasculitis at the July 2023 check-in, patients with cryoglobulinemic vasculitis (cryoglobulinemia) reported more flares, higher scores for fatigue, symptoms of vasculitis, and pain, and a higher percentage of patients reported active vasculitis.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

FLARES and VASCULITIS

Flare Reporting: Patients with cryoglobulinemic vasculitis reported more flares in the past 6 months (35%) compared to 26% in the VPPRN community.

Patients with cryoglobulinemic vasculitis

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FATIGUE and VASCULITIS

Fatigue: 39% of patients with cryoglobulinemic vasculitis reported “quite a bit” of fatigue in the past 6 months, compared to 23% in the VPPRN community.

Patients with cryoglobulinemic vasculitis

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SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: Patients with cryoglobulinemic vasculitis scored their symptoms of vasculitis higher over the past 28 days. 11% of patients with cryoglobulinemic vasculitis reported no symptoms of vasculitis compared to 22% in the VPPRN community.

Patients with cryoglobulinemic vasculitis

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PAIN and VASCULITIS

Pain: Patients with cryoglobulinemic vasculitis reported more pain in the past 6 months. 15% of patients with cryoglobulinemic vasculitis reported no pain. This is less than the 27% in the VPPRN community.

Patients with cryoglobulinemic vasculitis

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CURRENT STATE OF VASCULITIS

Current State of Vasculitis: 35% of patients with cryoglobulinemic vasculitis reported their vasculitis as active. This is higher than the 24% reported in the Network.

Patients with cryoglobulinemic vasculitis

Entire VPPRN Community