VPPRN Patient-Powered Research
Behçet's Disease (BD)
Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing. The graphs below reflect the scores/ratings of patients with Behçet’s Disease (BD) compared to the Network as a whole. Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2024 check-in:
- Compared to patients with other forms of vasculitis, patients with BD reported the following:
- more flares
- higher scores for fatigue
- higher scores for their symptoms of vasculitis over the past 28 days
- higher scores for pain
- a larger percentage of patients with BD reported their vasculitis as active.
- Compared to patients with other forms of vasculitis, patients with BD reported the following:
If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.
FLARES and VASCULITIS
Flare Reporting: At the January 2024 check-in, patients with BD reported more flares in the past 6 months (63%) compared to 25% in the VPPRN community. This is a trend we have seen for the past 3 VPPRN check-in timepoints (January 2023, July 2023, and January 2024).
Patients with Behçet’s disease
Entire VPPRN Community
FATIGUE and VASCULITIS
Fatigue: At the January 2024 check-in, 57% of patients with BD reported “quite a bit” or “very much” fatigue on average. This is higher than the 34% in the VPPRN community.
Patients with Behçet’s disease
Entire VPPRN Community
SYMPTOMS of VASCULITIS
Symptoms of Vasculitis: Patients with BD scored their symptoms of vasculitis higher over the past 28 days. 5% of patients with BD reported no symptoms of vasculitis compared to 24% in the VPPRN community.
Patients with Behçet’s disease
Entire VPPRN Community
PAIN and VASCULITIS
Pain: At the January 2024 check-in, patients with BD reported more pain on average in the past 6 months. 12% of patients with BD reported no pain (score = 0; no pain). This is less than the 27% in the VPPRN community.
Patients with Behçet’s disease
Entire VPPRN Community
MEMBERS' CURRENT STATE OF VASCULITIS
Members’ Current State of Vasculitis: 63% of patients with BD reported their vasculitis as active at the January 2024 check-in. This is higher than the 25% reported in the Network.
Patients with Behçet’s disease
Entire VPPRN Community
