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VPPRN Patient-Powered Research - VascSkin Study

VascSkin: Skin Vasculitis Quality of Life Survey

Skin involvement caused by vasculitis can be painful, burn, itch, and be visible to others. The impact of skin vasculitis on quality of life and well-being can be serious and is poorly understood by health care providers. To better understand the impact of vasculitis-related skin involvement on patients’ quality of life, Robert Micheletti, MD, Associate Professor of Dermatology at the University of Pennsylvania, in partnership with the Vasculitis Patient-Powered Research Network (VPPRN), launched the VascSkin Study.

Recruitment for this Study is Closed

About the VPPRN VascSkin Study

  1. The goal of the study is to help researchers better understand the impact that vasculitis-related skin disease has on patients.
  2. To collect data on the quality of life in patients with skin manifestations of vasculitis and compare results to what is already known about the quality of life in vasculitis more generally.
  3. To gather preliminary data from patients which may help form the basis for a patient-reported outcome tool measuring response in clinical studies.

Any patient with a diagnosis of vasculitis and have had skin lesions or a rash due to your vasculitis.

If you choose to be in the study, you will complete a survey with questions about your health status as well as about how skin vasculitis impacts your daily life.

The survey is roughly 60 short questions and will take approximately 10-15 minutes to complete.

There are only two easy steps to participate!

CONSENT FORM: By clicking “Join the Study” below you will be taken to the VascSkin consent page.

COMPLETE THE SURVEY: Immediately after completing the study consent, you will be taken to the online survey. The survey will take between 10 – 15 minutes to complete.

Join the Study

Questions or Concerns? The study coordinator is available for you to contact if you have any questions or concerns. Please contact Dr. Micheletti at 215-662-2737 or [email protected].

If you cannot reach a member of the research team or if you want to talk to someone other than those working on the study, you may contact the VPPRN staff at [email protected] or the UPenn Office of Regulatory Affairs with any questions, concerns, or complaints by calling (215) 898-2614.

Not a Member of the VPPRN?

If you aren’t a member of the Vasculitis Patient-Powered Research Network (VPPRN), we invite you to join today!

We want to understand your individual patient experience. We will learn about individual patient experiences by collecting data you provide. We’ve made it easy for you to contribute this data to make vasculitis research happen now.

Questions?  Please contact Christine Yeung, the VPPRN Network Manager at [email protected]

Interested in Other Research Opportunities?

The goal of the VPPRN research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis. Learn about current opportunities to participate in research.