Patient Experience of EGPA: Interpreting and Communicating Results from the MANDARA Clinical Trial

A signature feature of the Vasculitis Patient-Powered Research Network (VPPRN) is that patients should be full partners with investigators and clinicians in research and care.  This is why the VPPRN embraces a leadership model that includes Patient Partners alongside the Principal Investigator for each study.  Patient Research Partners operate as active members of the research team on equal basis with professional researchers and investigator, adding the benefit of their experiential knowledge to all phases of research study.

The VPPRN wants to know if YOU meet the following criteria:

• Are you interested in taking on the challenge of representing the needs of all patients with vasculitis?
• Can you commit to the time needed to see a research study through?  (The planning, development, and execution of a research study can take many months or years).
• Do you have easy access to the internet and are internet-savvy?
• Are you enthusiastic and excited at the prospect of collaborating with the VPPRN to improve lives and advancing research?

If you answered YES to all of the questions above, YOU may be exactly who we are looking and we want to hear from you!