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Patient Experience of EGPA: Interpreting and Communicating Results from the MANDARA Clinical Trial

Call for VPPRN Patient Research Partner

The Vasculitis Patient-Powered Research Network (VPPRN) is seeking volunteers to serve as Patient Research Partners for a research project to better understand the lived experience of patients with EGPA.

What is a Patient Research Partner?

A signature feature of the Vasculitis Patient-Powered Research Network (VPPRN) is that patients should be full partners with investigators and clinicians in research and care.  This is why the VPPRN embraces a leadership model that includes Patient Partners alongside the Principal Investigator for each study.  Patient Research Partners operate as active members of the research team on equal basis with professional researchers and investigator, adding the benefit of their experiential knowledge to all phases of research study.

The VPPRN wants to know if YOU meet the following criteria:

  • Are you interested in taking on the challenge of representing the needs of all patients with vasculitis?
  • Can you commit to the time needed to see a research study through?  (The planning, development, and execution of a research study can take many months or years).
  • Do you have easy access to the internet and are internet-savvy?
  • Are you enthusiastic and excited at the prospect of collaborating with the VPPRN to improve lives and advancing research?

If you answered YES to all of the questions above, YOU may be exactly who we are looking and we want to hear from you! 

Apply to Become a VPPRN Patient Research Partner

Please complete the form below and upload a copy of your CV and/or resume.  You will be contacted by the VPPRN Network Manager, Christine Yeung, regarding your application status.

Submission window has closed.

If you have any questions, please contact Christine Yeung, the VPPRN Network Manager, at [email protected].

Questions? Need More Information?

Contact Christine Yeung by phone/text at (215) 200-6147 or by email at [email protected] and she will be more than happy to assist.