Ways to Give

“No one should face vasculitis alone.”

For 40 years, the Vasculitis Foundation has been working to turn that belief into reality — building a global community that connects patients, families, physicians, and researchers, while advancing research, improving diagnosis, and creating space for support and understanding.

In this special Community Heroes: 40 Years of Strength video, we honor five individuals whose impact has helped shape the vasculitis community:

▪️ Dana DeMoulin — bringing connection and belonging to patients through support groups
▪️ Don Nagle — a parent advocate who turned personal experience into lasting impact
▪️ Dr. Jennifer Gordon — advancing patient-powered research as both a scientist and a patient
▪️ Megan Madison — transforming a long and difficult diagnosis journey into advocacy
▪️ Dr. Jessica Bloom — improving care and research for children living with vasculitis

Together, their stories reflect the heart of this community — resilience, compassion, and the power of coming together in the face of rare disease.

Living with vasculitis can feel isolating. But through connection, research, and shared experience, patients and families are finding support, answers, and hope.

As we celebrate four decades of progress, we also look ahead. With continued support, we can expand research, strengthen community, and improve outcomes for everyone affected by vasculitis.

💻 Learn more: www.vasculitisfoundation.org
🪙 Support the next 40 years: www.vasculitisfoundation.org/donate

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Living with vasculitis brings challenges, uncertainty, and resilience. In this inspiring video from the Vasculitis Foundation’s 2025 Annual Appeal, patients and families share their experiences of diagnosis, treatment, and life after vasculitis.

From ICU stays and treatment setbacks to finding hope through support groups and education, these powerful stories reveal what it means to face vasculitis with strength. Patients describe how they learned to advocate for themselves, adapt to new realities, and discover resilience in the support of family, community, and the Vasculitis Foundation.

The Vasculitis Foundation provides education, trusted resources, and support programs that help patients and caregivers navigate life with vasculitis. Together, we are building a stronger community and offering hope to everyone impacted by this rare disease.

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May is Vasculitis Awareness Month! Joshua Roberts' remarkable journey embodies the transformative power of connections through the Vasculitis Foundation's support programs and educational resources.

Learn more about Vasculitis Awareness Month and ways you can help create life-changing connections by visiting https://www.vasculitisfoundation.org/living-well/raise-awareness/!

Help us connect more patients to expert care, peer support, and vital resources by donating today at https://vasculitisfoundation.org/ways-to-give/make-a-donation/.

Thank you to our #VAM2025 sponsors: Amgen and AstraZeneca

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2024 Vasculitis Foundation Annual Appeal

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2024 Vasculitis Foundation Annual Appeal

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Living with a rare disease like vasculitis can be challenging, especially when family, friends, physicians, and others don't know what it is or understand your experience. In this video, people living with the disease and their care partners share what they wish others knew about vasculitis.

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Annaruth, who's living with Takayasu arteritis, a form of vasculitis, shares how participating in research has positively impacted her life and empowered her community.

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Annruth and John share how the Vasculitis Foundation resources such as support groups and webinars have helped them navigate Annaruth's vasculitis diagnosis.

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Victor James, who is living with vasculitis, shares why he supports the Vasculitis Foundation through monthly giving. www.vasculitisfoundation.org

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Jess Kanciruk received the life changing diagnosis of GPA in the summer of 2021. Because of donors like you, she was able to turn to the Vasculitis Foundation for support on her vasculitis journey. Thank you for standing with people living with vasculitis. Please consider investing in the VF’s mission today! Donate now: https://vasculitisfoundation.org/donate-to-the-vf/

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annual appeal teresa searls 1080p

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2022 Annual Appeal

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