VPPRN Patient-Powered Research

Takayasu's Arteritis (TAK)

At the July 2023 check-in, patients with Takayasu’s arteritis (TAK) reported similar scores for fatigue and pain when compared to patients with other forms of vasculitis.  We do see differences in the flares reported, scores/ratings for symptoms of vasculitis, and reporting of active vasculitis.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider. 

FLARES and VASCULITIS

Flare Reporting: Patients with TAK reported fewer flares in the past 6 months (16%) compared to 26% in the VPPRN community.

Patients with TAK

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FATIGUE and VASCULITIS

Fatigue: 9% of patients with TAK reported no fatigue in the past 6 months. This is similar to the 11% in the VPPRN community.

Patients with TAK

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SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: Patients with TAK scored their symptoms of vasculitis higher over the past 28 days. 15% of patients with TAK reported no symptoms of vasculitis over the past 28 days compared to 22% in the VPPRN community.

Patients with TAK

Entire VPPRN Community

PAIN and VASCULITIS

Pain: 26% of patients with TAK reported no pain in the past 6 months. This is similar to the 27% reported in the VPPRN community.

Patients with TAK

Entire VPPRN Community

CURRENT STATE OF VASCULITIS

Current State of Vasculitis: 20% of patients with TAK reported their vasculitis as active. This is less than the 24% reported in the Network.

Patients with TAK

Entire VPPRN Community