Options and Preferences for Treatments Informing recOmmendatioNS Study (OPTIONS Vasculitis)

Vasculitis researchers seeks to understand how patients with ANCA Associated vasculitis make choices about treatment options they may be offered.
This study is a survey designed to address the question of how patients with AAV weigh the benefits and harms of plasma exchange (PLEX). We will analyze how varying the baseline risk of End Stage Kidney Disease (ESKD) and serious infection influence the decision to pursue PLEX in AAV.

OPTIONS Lead Patient-Partner, Paul Brown

Hear Why Other Patients Are Participating 

My name is Paul and like you, I am a patient with vasculitis involved in vasculitis research. I have been a member of the VPPRN since its launch in 2014 and have served as a patient partner in the governance of the VPPRN. I am currently the lead patient-partner for the OPTIONS study and I’m personally asking you to join in helping researchers and healthcare providers understand patient values and preferences about plasma exchange in ANCA associated vasculitis. About 15 minutes of your time to complete this survey will make a big impact, so join me today and participate in the OPTIONS study.

about the study title block

Goal of the Study

This study is a survey designed to address the question of how patients with AAV weigh the benefits and harms of plasma exchange (PLEX). We will examine how varying the baseline risk of End Stage Kidney Disease (ESKD) and serious infection influence the decision to pursue PLEX in AAV.

Who Can Participate?

Any patient with a diagnosis of  ANCA-Associated Vasculitis (AAV) such as granulomatosis with polyangiitis (GPA), microscopic polyangiitis (MPA), eosinophilic granulomatosis with polyangiits (EGPA) and are members of the VPPRN.

What Is Involved?

A short survey that will take approximately 15 minutes to complete.

WHAT SHOULD I KNOW ABOUT A RESEARCH STUDY?

  • Whether or not you take part is up to you.
  • You can choose not to take part.
  • You can agree to take part and later change your mind.
  • Your decision will not be held against you.
  • You can ask all the questions you want before you decide.

Not a member of the VPPRN yet?

If you aren’t a member of the Vasculitis Patient-Powered Research Network (VPPRN), we invite you to join today!

We want to understand your individual patient experience. We will learn about individual patient experiences by collecting data you provide. We’ve made it easy for you to contribute this data to make vasculitis research happen now.

Interested in other research opportunities?

The goal of the VPPRN research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis. Learn about current opportunities to participate in research.