VF Board President, Karen Hirsch, appeared on Good Morning Washington, WJLA in Washington D.C. to discuss the importance of raising awareness about all rare diseases on Rare Disease Day 2017. Karen’s son, Michael, is a patient with GPA Wegener’s Vasculitis. Karen’s message was that she knows from personal experience the impact of a rare disease, but rare disease affects thousands of people so it’s critical to raise awareness and encourage more funding and research for all rare diseases.
VF Board President Talks About Personal Impact of Vasculitis on Rare Disease Day 2017
autoimmunityBehcet'sCentral nervous systemChurg Strauss SyndromeCryoglobulinemiaEosinophilic granulomatosis with polyangiitis (EGPA)giant cell arteritisGranulomatosis with polyangiitisHenoch-Schonlein purpuraHypersensitivity vasculitisinflammationKawasakileukocytoclasticMicroscopic polyangiitisPolyarteritis nodosaPolymyalgia rheumaticasinusitisTakayasu’s arteritisurticarialVasculitisWegener's
