
VascSkin: Skin Vasculitis Quality of Life Survey – Recruitment Closed
Skin involvement caused by vasculitis can be painful, burn, itch, and be visible to others. The impact of skin vasculitis on quality of life and well-being can be serious and is poorly understood by health care providers. To better understand the impact of vasculitis-related skin involvement on patients’ quality of life, Robert Micheletti, MD, Associate Professor of Dermatology at the University of Pennsylvania, in partnership with the Vasculitis Patient-Powered Research Network (VPPRN), launched the VascSkin Study.

Goal of the Study
- The goal of the study is to help researchers better understand the impact that vasculitis-related skin disease has on patients.
- To collect data on the quality of life in patients with skin manifestations of vasculitis and compare results to what is already known about the quality of life in vasculitis more generally.
- To gather preliminary data from patients which may help form the basis for a patient-reported outcome tool measuring response in clinical studies.
Who Can Participate?
What Is Involved?
How to Participate
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There are only two easy steps to participate!
Questions or Concerns? The study coordinator is available for you to contact if you have any questions or concerns. Please contact Dr. Micheletti at 215-662-2737 or [email protected].
If you cannot reach a member of the research team or if you want to talk to someone other than those working on the study, you may contact the VPPRN staff at [email protected] or the UPenn Office of Regulatory Affairs with any questions, concerns, or complaints by calling (215) 898-2614.
Not a member of the VPPRN yet?
If you aren’t a member of the Vasculitis Patient-Powered Research Network (VPPRN), we invite you to join today!
We want to understand your individual patient experience. We will learn about individual patient experiences by collecting data you provide. We’ve made it easy for you to contribute this data to make vasculitis research happen now.
Interested in other research opportunities?
The goal of the VPPRN research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis. Learn about current opportunities to participate in research.
Questions and Study Contact
Please note, our research team is here to make participation in this study easy for you. The study coordinator is available for you to contact if you have any questions or concerns. Contact the Study Team at [email protected] if you have questions about the study.