New VPPRN Study Open!
VascSkin: Skin Vasculitis Quality of Life Survey
To better understand the impact, Robert Micheletti, MD, assistant professor of dermatology at the Hospital of the University of Pennsylvania, in partnership with the Vasculitis Patient-Powered Research Network (VPPRN), launched the VascSkin Study.
The impact of vasculitis on physical and mental health can be significant. Many patients with vasculitis not only have debilitating pain, but are also dealing with the mental and social impacts of the symptoms of vasculitis. In particular, skin involvement caused by vasculitis can be painful, burning, itching, and visible to others. Their impact on quality of life and well-being can be serious and is poorly understood by direct care providers. In fact, the impact of skin involvement has on patients with vasculitis has never been studied systematically.
What is the impact on the quality of life impact of skin disease in patients with vasculitis?
The Challenge: Need Better Understanding
The contribution of skin disease to the overall quality of life and health impact of these conditions is poorly understood and, in fact, has never been studied systematically. An improved understanding of this impact is needed in order to characterize and address it..
Your experience will help improve understanding!
The Solution: Your Participation
Your participation will help researchers better understand specifically the impact that vasculitis skin disease has on patients. Improved understanding of this impact is needed in order to characterize and address it.
About the Study
Goals of the Study
- The goal of the study is to help researchers better understand the impact that vasculitis-related skin disease has on patients.
- To collect data on the quality of life in patients with skin manifestations of vasculitis and compare results to what is already known about the quality of life in vasculitis more generally.
- To gather preliminary data from patients which may help form the basis for a patient-reported outcome tool measuring response in clinical studies.
What is Involved
If you choose to be in the study, you will complete a survey with questions about your health status as well as about how skin vasculitis impacts your daily life.
The survey is roughly 60 short questions and will take approximately 10-15 minutes to complete.
How to Participate
There are only two easy steps to participate!
- CONSENT FORM: By clicking the “Join the Study” button below you will be taken to the VascSkin consent page.
- COMPLETE THE SURVEY: Immediately after completing the study consent, you will be taken to the online survey. The survey will take between 10 – 15 minutes to complete.
Please note, the study coordinator is available for you to contact if you have any questions or concerns. You can contact the study coordinator at [email protected].