VAM 2021 Calendar Day-by-Day Activities

This year’s Vasculitis Awareness Month activities are tailored to the times we are living in—with social distancing in mind.  Please join us in raising awareness of vasculitis and the need for more research for better treatments and a cure.

Scroll down to check out our interactive calendar to find ways to stay involved throughout the month of May.

FRIDAY | APRIL 30

The Race Is On to Spread Awareness!

Vasculitis Awareness Month 2021 starts tomorrow and the Race is On to raise awareness, find a cure and help every patient find victory over vasculitis!  We invite you to join us as we follow along with Brandon Hudgins as he races to victory at the Olympics.  Text BRANDON to 91999 or CLICK HERE to Join our Victory Over Vasculitis team!

SATURDAY | MAY 01

Vasculitis Awareness Month Begins Today!

Welcome to Vasculitis Awareness Month!  For the next 31 days we are honoring our amazing patients, dedicated healthcare professionals and brilliant scientists.  Celebrate #VAM2021 with us all month long.  We will be adding activities and updates throughout the month.  CLICK HERE.

SUNDAY | MAY 02

Meet Our Patient Heroes!

Our 2021 Patient Heroes are here!  Ordinary people can become extraordinary people in their journey through life and this has never been truer than today.  This Vasculitis Awareness Month, we are highlighting 10 special patients who are heroes to their families, friends, and community.  WATCH THEIR VIDEOS.

MONDAY | MAY 03

Join Victory Over Vasculitis!

Brandon Hudgins is a professional long-distance runner competing to make the 2021 Olympics Team.  Text BRANDON to 91999 or CLICK HERE to Join Victory Over Vasculitis and help us cheer Brandon as he chases his dream.

TUESDAY | MAY 04

Buy a #VAM2021 T-shirt!

Wear and share your story!  Remember to tag #VAM2021.  BUY HERE.

WEDNESDAY | MAY 05

Question of the Week!

Share a message about a woman who has made a positive impact on your life.  SUBMIT HERE.

THURSDAY | MAY 06

Attend the FDA Public Hearing!

The Food and Drug Administration (FDA) will hold a public meeting of the Arthritis Advisory Committee to discuss the new drug application (NDA) 214487, for avacopan oral capsules, submitted by ChemoCentryx, Inc., for the treatment of anti-neutrophil cytoplasmic antibody-associated vasculitis.  For complete information, visit HERE.

FRIDAY | MAY 07

Celebrate National Nurses Week. Thank a Nurse in Your Life!

Raise awareness of the important role nurses play in society.  National Nurses Week runs through May 12—Florence Nightingale’s birthday.  Send your favorite nurse a thank you!

SATURDAY | MAY 08

Join the Fun!  #VAM2021 Social Media Icons are Here!

The icons are here!  The icons are here!  Swap out your icons for Facebook, Instagram, and Twitter!  Remember to tag #VAM2021.  CLICK HERE.

SUNDAY | MAY 09

Women Who Inspire Us

Today we share special stories about mothers.

MONDAY | MAY 10

Thank You to Our Sponsors!

Many thanks to our sponsors for supporting our 2021 Vasculitis Awareness Month.

TUESDAY | MAY 11

Attend a Virtual Support Group Meeting!

The VF hosts weekly and monthly virtual support group meetings to bring the members of our vasculitis community together.  Everyone is welcome to attend.  Groups are limited to 15 attendees per meeting to ensure everyone has the opportunity (if they wish) to share.  LEARN MORE.

WEDNESDAY | MAY 12

Question of the Week!

The zebra represents rare diseases. IF you could pick an animal to represent vasculitis, what would it be?  SUBMIT HERE.

THURSDAY | MAY 13

Subscribe to Our Vasculitis Visionaries Podcast!

Listen each month for a new podcast introducing you to medical specialists who are leading research and understanding of vasculitis.  The podcasts are hosted by Ben Wilson and Kaley Beins, who bring their own perspectives as patients to the interviews.  SUBSCRIBE.

FRIDAY | MAY 14

Learn About the Vasculitis Pregnancy Registry (V-PREG)!

One of the most common questions women with vasculitis ask is how this disease will affect their ability to have children.  This registry is collecting information to help find answers to how vasculitis impacts reproductive health and pregnancy outcomes.  LEARN MORE.

SATURDAY | MAY 15

International Vasculitis Awareness Day

We are grateful to the many researchers around the world performing research to find the answers we all need.  Over the next few months we will be sharing their research.  WATCH HERE. 

SUNDAY | MAY 16

What’s Your VAM Victory?  Post on Social Media and Tag #VAM2021!

Vasculitis Awareness Month is a great time to educate your family and friends on what it is like to live with a rare disease like vasculitis.  Take a short video and share your story!  Post on social media and remember to tag #VAM2021!  Or, EMAIL the VF office to share.

MONDAY | MAY 17

Thank a Caregiver in Your Life!

All caregivers deserve our appreciation—whether it’s a family member or professional caregiver you know, or all the medical professionals working the front lines of the COVID-19 pandemic.  Give them a shout-out with a card, flowers, or a post on your social media.  Let them know they are loved!

TUESDAY | MAY 18

Watch Our 2020 Vasculitis Patient Conferences!

In 2020 we hosted three virtual conferences:  one for newly diagnosed patients, one for advanced patients, and a third for caregivers!  The videos are now available for viewing.  Topics include new treatments, research advances and additional resources.  Just login with your email address.  WATCH HERE 

WEDNESDAY | MAY 19

Question of the Week!

What VF conference topics appeal to you most for our next conferences?  ANSWER HERE.

THURSDAY | MAY 20

Behçet’s Awareness Day

Wear blue and spread awareness of Behcet’s!  The VF is honored to partner with the American Behcet’s Disease Association (ABDA), to support patients with Behcet’s and raise awareness and understanding of the disease.  LEARN MORE.

FRIDAY | MAY 21

Sharing Stories From Our Vasculitis Community!

Have you met our Patient Heroes?  WATCH their videos now.

SATURDAY | MAY 22

Attend Our Women and Vasculitis Conference!

Join us for a special conference focused on women and the special issues they have when diagnosed with vasculitis. Saturday, June 12, 2021.

SUNDAY | MAY 23

Going the Distance With Brandon Hudgins!

Brandon’s next race is on May 25th!  Text BRANDON to 91999 or CLICK HERE to Join Victory Over Vasculitis and help us cheer Brandon as he chases his dream.

MONDAY | MAY 24

Get Inspired! Read about Patients Turning Pain into Passion.

Read how others in the vasculitis community find the inspiration to pursue their goals and dreams!

READ STORIES

TUESDAY | MAY 25

Matching Gift Challenge!

We are very grateful to a special donor family who is matching gifts up to $5,000 in support of VAM2021.  Donate today and double your donation!  GIVE TODAY!

WEDNESDAY | MAY 26

Question of the Week!

In celebration of the VF’s 35th Anniversary, what’s your favorite VF memory over the past 35 years?  SUBMIT YOUR ANSWERS HERE.

THURSDAY | MAY 27

Masks Still On A Mission!

Vaccines are providing hope to people around the world.  We hope you will continue wearing a mask to protect yourself and your loved ones!  Take a picture of yourself and post on social media with the tag #VAM2021!

FRIDAY | MAY 28

Listen to Vasculitis Visionaries Podcast Series.

Learn more about this rare disease from the experts! Our Vasculitis Visionaries podcast series features conversations with medical specialists about vasculitis. The podcasts are co-hosted by Ben Wilson and Kaley Beins, two patients with vasculitis. LISTEN.

SATURDAY | MAY 29

Enroll in the Global Rheumatology Alliance COVID-19 Vaccine Survey

With the recent availability of various COVID-19 vaccines, we are interested in learning how people with rheumatic disease make decisions regarding the vaccines in light of their rheumatic disease.  ENROLL.

SUNDAY | MAY 30

2021 V-RED Award Winners to be Announced!

Thanks to everyone who nominated a medical professional for the 2021 VF Recognizing Excellence in Diagnostics (V-RED) Awards!  We received more than 50 nominations!  This year we have a winner and two honorable mentions.  Meet our winners today! CLICK HERE.

MONDAY | MAY 31

Last Call for Donations!  Help Us Meet Our $5,000 Matching Gift

Today is the last day of Vasculitis Awareness Month but awareness efforts go on year-round.  Make a donation today and double your donation!  DONATE.

Thank You to the Following VAM 2021 Sponsors!

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