VAM 2021 Calendar Day-by-Day Activities
This year’s Vasculitis Awareness Month activities are tailored to the times we are living in—with social distancing in mind. Please join us in raising awareness of vasculitis and the need for more research for better treatments and a cure.
Scroll down to check out our interactive calendar to find ways to stay involved throughout the month of May.
FRIDAY | APRIL 30
The Race Is On to Spread Awareness!
Vasculitis Awareness Month 2021 starts tomorrow and the Race is On to raise awareness, find a cure and help every patient find victory over vasculitis! We invite you to join us as we follow along with Brandon Hudgins as he races to victory at the Olympics. Text BRANDON to 91999 or CLICK HERE to Join our Victory Over Vasculitis team!
SATURDAY | MAY 01
Vasculitis Awareness Month Begins Today!
Welcome to Vasculitis Awareness Month! For the next 31 days we are honoring our amazing patients, dedicated healthcare professionals and brilliant scientists. Celebrate #VAM2021 with us all month long. We will be adding activities and updates throughout the month. CLICK HERE.
SUNDAY | MAY 02
Meet Our Patient Heroes!
Our 2021 Patient Heroes are here! Ordinary people can become extraordinary people in their journey through life and this has never been truer than today. This Vasculitis Awareness Month, we are highlighting 10 special patients who are heroes to their families, friends, and community. WATCH THEIR VIDEOS.
MONDAY | MAY 03
Join Victory Over Vasculitis!
Brandon Hudgins is a professional long-distance runner competing to make the 2021 Olympics Team. Text BRANDON to 91999 or CLICK HERE to Join Victory Over Vasculitis and help us cheer Brandon as he chases his dream.
THURSDAY | MAY 06
Attend the FDA Public Hearing!
The Food and Drug Administration (FDA) will hold a public meeting of the Arthritis Advisory Committee to discuss the new drug application (NDA) 214487, for avacopan oral capsules, submitted by ChemoCentryx, Inc., for the treatment of anti-neutrophil cytoplasmic antibody-associated vasculitis. For complete information, visit HERE.
FRIDAY | MAY 07
Celebrate National Nurses Week. Thank a Nurse in Your Life!
Raise awareness of the important role nurses play in society. National Nurses Week runs through May 12—Florence Nightingale’s birthday. Send your favorite nurse a thank you!
SATURDAY | MAY 08
Join the Fun! #VAM2021 Social Media Icons are Here!
The icons are here! The icons are here! Swap out your icons for Facebook, Instagram, and Twitter! Remember to tag #VAM2021. CLICK HERE.
MONDAY | MAY 10
Thank You to Our Sponsors!
Many thanks to our sponsors for supporting our 2021 Vasculitis Awareness Month.
TUESDAY | MAY 11
Attend a Virtual Support Group Meeting!
The VF hosts weekly and monthly virtual support group meetings to bring the members of our vasculitis community together. Everyone is welcome to attend. Groups are limited to 15 attendees per meeting to ensure everyone has the opportunity (if they wish) to share. LEARN MORE.
THURSDAY | MAY 13
Subscribe to Our Vasculitis Visionaries Podcast!
Listen each month for a new podcast introducing you to medical specialists who are leading research and understanding of vasculitis. The podcasts are hosted by Ben Wilson and Kaley Beins, who bring their own perspectives as patients to the interviews. SUBSCRIBE.
FRIDAY | MAY 14
Learn About the Vasculitis Pregnancy Registry (V-PREG)!
One of the most common questions women with vasculitis ask is how this disease will affect their ability to have children. This registry is collecting information to help find answers to how vasculitis impacts reproductive health and pregnancy outcomes. LEARN MORE.
SATURDAY | MAY 15
International Vasculitis Awareness Day
We are grateful to the many researchers around the world performing research to find the answers we all need. Over the next few months we will be sharing their research. WATCH HERE.
SUNDAY | MAY 16
What’s Your VAM Victory? Post on Social Media and Tag #VAM2021!
Vasculitis Awareness Month is a great time to educate your family and friends on what it is like to live with a rare disease like vasculitis. Take a short video and share your story! Post on social media and remember to tag #VAM2021! Or, EMAIL the VF office to share.
MONDAY | MAY 17
Thank a Caregiver in Your Life!
All caregivers deserve our appreciation—whether it’s a family member or professional caregiver you know, or all the medical professionals working the front lines of the COVID-19 pandemic. Give them a shout-out with a card, flowers, or a post on your social media. Let them know they are loved!
TUESDAY | MAY 18
Watch Our 2020 Vasculitis Patient Conferences!
In 2020 we hosted three virtual conferences: one for newly diagnosed patients, one for advanced patients, and a third for caregivers! The videos are now available for viewing. Topics include new treatments, research advances and additional resources. Just login with your email address. WATCH HERE.
THURSDAY | MAY 20
Behçet’s Awareness Day
Wear blue and spread awareness of Behcet’s! The VF is honored to partner with the American Behcet’s Disease Association (ABDA), to support patients with Behcet’s and raise awareness and understanding of the disease. LEARN MORE.
SATURDAY | MAY 22
Attend Our Women and Vasculitis Conference!
Join us for a special conference focused on women and the special issues they have when diagnosed with vasculitis. We will be adding more information in the near future! Save the date for a free conference.
SUNDAY | MAY 23
Going the Distance With Brandon Hudgins!
Brandon’s next race is on May 25th! Text BRANDON to 91999 or CLICK HERE to Join Victory Over Vasculitis and help us cheer Brandon as he chases his dream.
THURSDAY | MAY 27
Masks Still On A Mission!
Vaccines are providing hope to people around the world. We hope you will continue wearing a mask to protect yourself and your loved ones! Take a picture of yourself and post on social media with the tag #VAM2021!
FRIDAY | MAY 28
Listen to Vasculitis Visionaries Podcast Series.
Learn more about this rare disease from the experts! Our Vasculitis Visionaries podcast series features conversations with medical specialists about vasculitis. The podcasts are co-hosted by Ben Wilson and Kaley Beins, two patients with vasculitis. LISTEN.
SATURDAY | MAY 29
Enroll in the Global Rheumatology Alliance COVID-19 Vaccine Survey
With the recent availability of various COVID-19 vaccines, we are interested in learning how people with rheumatic disease make decisions regarding the vaccines in light of their rheumatic disease. ENROLL.
SUNDAY | MAY 30
2021 V-RED Award Winners to be Announced!
Thanks to everyone who nominated a medical professional for the 2021 VF Recognizing Excellence in Diagnostics (V-RED) Awards! We received more than 50 nominations! This year we have a winner and two honorable mentions. The names will be announced soon and shared on our social media channels! Stay tuned!
MONDAY | MAY 31
Last Call for Donations! Help Us Meet Our $5,000 Matching Gift
Today is the last day of Vasculitis Awareness Month but awareness efforts go on year-round. Make a donation today and double your donation! DONATE.