VAM 2020 Calendar Day-by-Day Activities

This year’s Vasculitis Awareness Month activities are tailored to the times we are living in—with social distancing in mind. Please join us in raising awareness of vasculitis and the need for more research for better treatments and a cure.

Scroll down to check out our interactive calendar to find ways to stay involved throughout the month of May. Or click here to download the calendar to your desktop or mobile device.

THURSDAY | APRIL 30

The Race Is On to Spread Awareness!

Vasculitis Awareness Month 2020 starts tomorrow! Swap out your social media artwork with our new VAM graphics, created especially for the vasculitis community to spotlight #VAM2020! GET YOUR GRAPHICS TODAY!

FRIDAY | MAY 01

Vasculitis Awareness Month Begins Today!

Help us spread the word, and share our VAM 2020 video with your family, friends, associates, and your wider social media community! The Race Is On—for more research, better treatments and improved quality of life for patients worldwide! WATCH VIDEO.

SATURDAY | MAY 02

Thank Your Health Care Providers!

Show your appreciation today! Whether it’s the medical professionals you entrust with your vasculitis care or health workers on the front lines of the COVID-19 pandemic, give them a shout-out today! DOWNLOAD a certificate to present to your provider.

SUNDAY | MAY 03

Buy Your VAM 2020 T-Shirt!

Wear and share your story! Our new Vasculitis Awareness Month T-shirt is a great conversation starter. Buy a shirt and educate those around you about vasculitis! BUY NOW.

MONDAY | MAY 04

Share Your Life Hack for Living with Vasculitis.

Post a short video on social media with your tips for making day-to-day life with vasculitis easier! Remember to tag the VF! #VAM2020

TUESDAY | MAY 05

Make a Quick $5 Donation.

Even small donations count toward helping us achieve our goals.  PLEASE GIVE TODAY! 

WEDNESDAY | MAY 06

Celebrate National Nurses Day 2020. Thank a Nurse in Your Life!

Raise awareness of the important role nurses play in society. Today marks the beginning of National Nurses Week, which runs through May 12—Florence Nightingale’s birthday. CLICK HERE to download a certificate to share with your favorite nurse.

THURSDAY | MAY 07

Violin for Vasculitis (V4V) Live Request Hour on Facebook!
4 pm Central

CLICK HERE to join the incredibly gifted Allison Ross for this special hour of music entertainment! Bring your music requests to share with Allison, who created V4V to raise awareness and understanding of vasculitis.

FRIDAY | MAY 08

Listen! Vasculitis Visionaries Podcasts.

Join us for our Vasculitis Visionaries podcast series, which features conversations with medical specialists about vasculitis. The podcasts are co-hosted by Ben Wilson and Kaley Beins, two patients with vasculitis.  LISTEN HERE.

SATURDAY | MAY 09

Share Information about the V-PREG Registry!

The goal of the Vasculitis Pregnancy Registry (V-PREG) is to learn more about pregnancy in women with vasculitis. The study consists of several online surveys. V-PREG is open to pregnant women, 18 years of age or older, who have been diagnosed with any form of vasculitis. To join V-PREG, participants must first be a member of the VPPRN. CLICK HERE for details.

SUNDAY | MAY 10

Make a Gift in Honor or Memory of a Special Mom!

Celebrate Mother’s Day with a donation to support the Vasculitis Foundation! GIVE TODAY.

MONDAY | MAY 11

Enroll in the Vasculitis COVID-19 Patient Project.

The VF and the Vasculitis Patient-Powered Research Network have teamed up with the Autoimmune Research Collaborative to launch the Vasculitis COVID-19 Patient Project. This study will survey patients over the course of one year to better understand COVID-19 concerns of people with vasculitis and to track respiratory illnesses. CLICK HERE to enroll in the study.

TUESDAY | MAY 12

Listen to The Ride by Vasculitis Journey Podcast Series.

Dr. Sara Amodio, VF board member and patient with vasculitis, has created a series that provides a unique view of what it’s like to be a patient with a rare disease. The series is available through Apple Podcasts and Spotify® and is an offshoot of her Facebook site, Vasculitis Journey. LISTEN HERE.

WEDNESDAY | MAY 13

Learn about the VPPRN!

The Vasculitis Patient-Powered Research Network (VPPRN) is the research arm of the VF, in partnership with the Vasculitis Clinical Research Consortium. The VPPRN seeks to transform how clinical research in vasculitis is conducted.  JOIN NOW.

THURSDAY | MAY 14

Watch a Webinar on Self-Publishing!

This webinar both inspires and educates patients on how to share their stories through online publications and platforms. Hosts include Sarah Schuster, Editorial Director of The Mighty, and author Kris Kelbrants.

WATCH NOW!

FRIDAY | MAY 15

International Vasculitis Awareness Day

Breaking research webinar with our vasculitis experts!

Tanaz A. Kermani, MD, Peter Grayson, MD, and Jennifer Gordon, PhD, will discuss the most impactful research studies of 2019 and the future of vasculitis research in a new world with COVID-19. The Vasculitis Patient-Powered Research Network (VPPRN) presents the webinar, with hosts Kalen Young, MA, Director of Research Affairs for the VPPRN, and Dianne Shaw, patient-partner. REGISTER & LISTEN TODAY!  

 

SATURDAY | MAY 16

Make a Short Video about Your Vasculitis Journey. Post on Facebook and Tag the VF!

Vasculitis Awareness Month is a great time to educate the public on what it is like to live with a rare disease like vasculitis. Take a short video with your smartphone or video camera, and share your story. Post on social media and remember to tag the VF!

[ps2id id=’May17′ target=”/]SUNDAY | MAY 17

Celebrate Caregivers Day

All caregivers deserve our appreciation right now—whether it’s a family member or professional caregiver you know, or all the medical professionals working the front lines of the COVID-19 pandemic. Give them a shout-out with a card, flowers, or a post on your social media. Let them know they are loved!

MONDAY | MAY 18

The VF is Hosting a Pajama Party, Saturday, June 20!

Tickets for our first-ever virtual fundraiser and awareness event go on sale today! Join us for an evening of special performances, personal stories, and a few surprises! Together, we’ll celebrate our resilience in times of crisis and raise critical funds to support education and awareness initiatives for the vasculitis community.  

TUESDAY | MAY 19

Going the Distance Live with Brandon Hudgins!

Brandon Hudgins is a professional distance runner and vasculitis patient who has experienced his share of serious challenges—including the recent postponement of the 2020 Tokyo Summer Olympics games and qualifying team trials that he was training and preparing for. Learn how he gives and gets inspiration. CLICK HERE.

WEDNESDAY | MAY 20

Behçet’s Awareness Day

Want to learn more about Behcet’s? Last year the VF partnered with ABDA, the patient advocacy organization for people with Behcet’s, to host a one-day summit. CLICK HERE to watch the sessions.
Partnering with other organizations around the world is part of the VF’s mission to improve the lives of all our patients.

THURSDAY | MAY 21

Road to Wellness Webinar: “Mindfulness and Meditation”

Learn how to practice mindfulness and meditation in these challenging times! LEARN HERE.

FRIDAY | MAY 22

Take a Walk with Friends and Family!

Feeling cooped up? Take a walk with your loved ones (while practicing proper social distancing)! Take in some fresh air and a change of scenery.

SATURDAY | MAY 23

Share Your Life Hack for Living with Vasculitis!

Post a short video on social media with your tips for making day-to-day life with vasculitis easier! Remember to tag the VF! #VAM2020

SUNDAY | MAY 24

Get Inspired! Read about Patients Turning Pain into Passion.

Read how others in the vasculitis community find the inspiration to pursue their goals and dreams!

READ STORIES

MONDAY | MAY 25

VAM Matching Gift Challenge!

We are very grateful to a special donor family who is matching gifts up to $10,000 in support of VAM 2020. You can also start your own fundraiser on behalf of the VF during this time. GIVE TODAY!

TUESDAY | MAY 26

Learn to Journal!

The VF Health Journal can help you organize and track your medications, symptoms, and vital medical statistics. In this webinar, Suzanne DePaolis will walk you through each section of the journal. WATCH.

WEDNESDAY | MAY 27

Ask Your Research Question.

What questions do you think are important for vasculitis research? Ask yours today!  CLICK HERE.

THURSDAY | MAY 28

Listen to Vasculitis Visionaries Podcast Series.

Learn more about this rare disease from the experts! Our Vasculitis Visionaries podcast series features conversations with medical specialists about vasculitis. The podcasts are co-hosted by Ben Wilson and Kaley Beins, two patients with vasculitis. LISTEN.

FRIDAY | MAY 29

Enroll in the Vasculitis COVID-19 Patient Survey

We all have questions when it comes to how the rapidly spreading coronavirus (COVID-19) is affecting people with vasculitis. Medical experts agree there are more questions than answers. The VF and the Vasculitis Patient Powered Research Network (VPPRN) have teamed up with partners in the Autoimmune Research Collaborative (ARC) to launch the COVID-19 Patient Project.

The COVID-19 Patient Project will follow patients for one year to gather as much information as possible about the disease. We are enrolling patients who have vasculitis who have or who have not had COVID-19.  Participation involves completing several short surveys over the course of the year. Each survey should take no more than 15 minutes of your time.

CLICK HERE to receive more information about enrolling in the study.

SATURDAY | MAY 30

2020 V-RED Award Winners to be Announced!

Thanks to everyone who nominated a medical professional for the 2020 VF Recognizing Excellence in Diagnostics (V-RED) Awards! We received more than 65 nominations this year. There’s a tie for the overall winner and one honorable mention. The winners names will be announced soon and shared on our social media channels! Stay tuned!

SUNDAY | MAY 31

Complete Your Bingo Card and Enter Drawing for VAM T-Shirt!

Remember to complete your Bingo card for the chance to receive a free VAM 2020 T-shirt! Just fill out the card and email to: [email protected] Or send by postal mail to: Vasculitis Foundation, PO Box 28660, Kansas City, MO 64188. Entries must be submitted no later than June 5, 2020. CLICK HERE FOR A BINGO CARD 

Thank You to the Following VAM 2020 Sponsors!

gsk copy