Vasculitis Awareness Month - Vasculitis Foundation

You Are the Reason This Community Exists

May is Vasculitis Awareness Month — a time to raise awareness, share stories, and ensure no one faces vasculitis alone.

This year, we celebrate the Vasculitis Foundation’s 40th anniversary — four decades of progress, connection, and lives transformed.

What began as a small group has grown into a global community helping patients find answers, access expert care, and feel supported every step of the way.

This year’s Community Heroes represent the power of that mission — patients, care partners, researchers, and advocates who are changing lives every day.

Your support helps power what comes next.

Read our full Spring Appeal letter.

Will you make a gift to support the next 40 years?

Smiling woman with long brown hair in a light blouse, photographed indoors with a softly blurred background.

Jessica Bloom, MD, MSCS

Pediatric Rheumatologist, Co-Founder of the Pediatric Vasculitis Research Registry within the Vasculitis Patient-Powered Research Network (pedsVPPRN)

Jessica Bloom, MD

Dr. Jessica Bloom is advancing care and research for children and teenagers with vasculitis, improving outcomes for patients and families. As lead investigator of the first pediatric registry within the VPPRN, she is helping shape a stronger future for the next generation.

Smiling woman with short curly gray hair wearing a purple top, standing outdoors in front of trees and a wooden fence.

Dana DeMoulin

Vasculitis Foundation Support Group Facilitator

Dana DeMoulin

Dana DeMoulin leads the Vasculitis Foundation’s support community, creating safe spaces where patients and care partners feel understood and supported. Through more than 240 annual support groups, she helps people navigate diagnosis and find connection, strength, and hope.

Woman with short light brown hair wearing a black blazer, facing forward against a plain light background.

Jennifer Gordon, PhD

Researcher, VPPRN Co-Investigator, Diagnosed with Eosinophilic Granulomatosis with Polyangiitis (EGPA)

Jennifer Gordon, PhD

Dr. Jennifer Gordon is a leader in vasculitis research and a co-investigator of the VPPRN, helping ensure patient voices guide discovery. As both a researcher and a patient living with EGPA, she advances awareness, advocacy, and connection across the global community.

Smiling woman wearing a baseball cap and sunglasses on her head, outdoors at a field on a sunny day.

Megan Madison

Dedicated Advocate, Diagnosed with Granulomatosis with Polyangiitis (GPA)

Megan Madison

Megan Madison has turned her journey with vasculitis into advocacy, raising awareness and supporting others facing diagnosis and treatment. Through fundraising and storytelling, she helps others feel less alone while building connection and strength within her local community.

Smiling older man with gray hair wearing a white shirt, standing in front of a brick wall.

Don Nagle

Former VF Board Member, Parent of a Vasculitis Patient

Don Nagle

Don Nagle’s commitment to the Vasculitis Foundation and the VPPRN has helped advance patient-driven research and expand a global registry of more than 5,000 participants. His leadership and generosity have strengthened the Foundation’s long-term stability and future impact.

Take Action. Make a Difference.

Make a Gift

Support research, care,
and community.

Shop 40th Anniversary Gear

Wear hope. Spread awareness.
Additional styles available.

Start a Fundraiser and Promote on Social

Turn your voice into impact for the vasculitis community.

Celebrate Community Heroes

Hear their stories and share their impact.

Make Your Voice Heard

One email can make a difference. Fill in your details and send.

Educate. Empower. Inspire.

Educational Videos

Watch. Learn.

Share.

Support Groups

Connect. Ask.

Grow.

Register for Symposium

Join us in Denver this summer.

Read V-BOLD Impact Report

See the impact.

Fuel what’s next.

Health Equity in Vasculitis

Advancing access to healthcare.

Amgen's ANCA Resource Hub

Your place for tools and support.

Your Support Changes Lives

Patients are still waiting too long for answers. Families are still searching for expert care. Researchers are still working toward better treatments — and a cure. Will you make a gift to support our next 40 years?

Thank You to Our 2026 Vasculitis Awareness Month Sponsor

Our Community is Spreading Awareness.

Show us how YOU are spreading awareness.

Post on Facebook or Instagram and tag @VasculitisFoundation with the hashtag #VAM2026

vasculitisfoundation

40 years supporting the vasculitis community
Education • Awareness • Research
⬇️ Support Vasculitis Awareness Month

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