The Vasculitis Patient-Powered Research Network (V-PPRN) is a team of patients with vasculitis, caregivers, researchers, data specialists, and providers on a daily mission to share and learn from one another with a vision for the future in clinical vasculitis research.
The V-PPRN is currently conducting the VascWork study in partnership with the Vasculitis Clinical Research Consortium (VCRC).
The Impact of Vasculitis on Employment and Income (VascWork) Study
Work disability associated with rheumatic diseases accounts for an important part of the costs of these conditions, in addition to direct treatment costs, especially with biological agents. Interest has been growing in studying work disability associated with rheumatoid arthritis, but only a few studies have investigated vasculitis.
The purpose of this study is to learn about the impact of vasculitis on employment and income in patients with different systemic vasculitides. Although much progress has been made towards finding better medical therapies to treat vasculitis, patients often must manage substantial disease and treatment burdens. Patients with systemic vasculitis may have high rates of work disability and significant loss of personal income from employment.
The study is being conducted by the VCRC and led by Dr. Christian Pagnoux, from Mount Sinai Hospital, in Toronto, Canada. He is collaborating with Dr. Lillian Barra of the University of Western Ontario, in London, Canada along with colleagues at the University of South Florida.
WHAT WILL THE STUDY ASK?
Employment Status: Do patients have to take a prolonged sick leave?
Work Productivity: How many patients have to adjust their work because of the physical demands of the job?
Income: How many patients have a loss of income following the diagnosis of their disease?
Click here to learn more about the V-PPRN and to participate in the VascWork study.
WHY PARTICIPATE IN THE VASCWORK STUDY?
Hear from patients just like you about why it is important to participate in this study.