Joyce Kullman

Joyce joined the Vasculitis Foundation (then the Wegener’s Granulomatosis Support Group, Inc.) in 1995 after her father was diagnosed with the disease. She served on the VF Board of Directors from 1997- 2002 when she became executive director. Her passion is focused on improving the lives of patients living with vasculitis.

Under her guidance, the Vasculitis Foundation has expanded its mission from supporting one disease (Wegener’s) to 15+ diseases and has partnered with major vasculitis medical centers, patient advocacy organizations and researchers around the world to provide more coordinated patient care and expanded research efforts.

Joyce serves as co-chair of the Coalition of Patient Advocacy Groups and is a member of the National Coalition of Autoimmune Patient Groups, Nonprofit Connect and the American Fundraising Professionals Association. In addition she serves on the Vasculitis Clinical Research Consortium Committee and on the Scientific Advisory Board for the international INTRICATE research project.