VPPRN Patient-Partners - Row 1

  • Jennifer Gordon

    Lead Patient-Partner EGPA Registry

    When I was diagnosed with EGPA in 2014, I tried to absorb everything I could about EGPA and vasculitis. Even though I have a background in science, I had never heard of vasculitis, so I had A LOT to learn. As I combed through information online, the value of the…...

  • Paul Brown

    Lead Patient-Partner Options

    I decided to get involved in VPPRN research for two reasons. First, after having a “crash and burn” experience with GPA, and discovering that no one knew the cause and there was no cure; I felt that I owed it to my family to do what I could to help…...

  • John Stadler

    Lead Patient-Partner VascStrong

    My name is John Stadler, I live with Vasculitis and therefore, I am very supportive of research that furthers the knowledge of the disease along with treatment options.  My choice to lead the Frailty study was quite easy.  I personally experience the effects of Vasculitis in my life.  I have…...

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Building upon the collective strength of the vasculitis community, the Foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.

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