Although being diagnosed with vasculitis can feel scary at times, one thing that can help you manage the disease and come to terms with it is talking to other patients. VF Board Member Sara Baird Amodio, MSW, EdD, was diagnosed with eosinophilic granulomatosis with polyangiitis (EGPA, formerly Churg-Strauss syndrome) in…...
VF Celebrates Vasculitis Awareness Month 2018
The Vasculitis Foundation, the world’s largest organization dedicated to providing advocacy, education and support for people with vasculitis, announces the launch of Vasculitis Awareness Month (May 2018), an annual effort to create global awareness of the disease that’s so rare that fewer than 200,000 new cases are diagnosed each year.…...
KU Vasculitis Symposium – August 6 – Register Today
The Vasculitis Foundation is pleased to partner with the University of Kansas Medical Center to present the 2016 Vasculitis Symposium Educational Conference. The one-day meeting will be held on Saturday, August 6 at the KU Edwards Campus in Overland Park, Kansas. The conference will feature several vasculitis experts discussing treatment…...
VF Breaks $2,000,000 in Research Funding
In February, the VF Board of Directors approved three new research studies for funding, bringing to a total, $2,109,847,10, the VF has committed to supporting vasculitis research since 2002. The VF Research Program, established in 2002, is funded through the generous donations of our members and extended vasculitis community. The…...
