Churg Strauss Syndrome

Since the beginning of my affiliation with the Vasculitis Foundation, and as a regular contributor to the newsletter, I have received many phone calls and emails from patients who struggle to find hope and optimism needed to effectively cope with their illness.  As a patient myself, and one trained to…...

I respect the medical profession immensely.  Any person who devotes 8, 10, 12 years of their life to studying how to diagnose, treat, and save the human body has earned my respect.  There is one caveat however.  Doctors do not know all.  We as patients need to understand that, and…...

Happy New Year to all of you.  A few days into 2015 and I’m sure many of you have started your new year’s resolutions that for many of us will end as quickly as they began.  For those of you who are able to remain committed, that is fantastic.   The…...

In my last article, I wrote about the feelings of loneliness a patient often experiences after a diagnosis of diseases like vasculitis.  This article will focus on the caregivers of these patients who are often overlooked during this difficult time.    The most effective way for me to convey what…...

“I feel so alone.”  This statement is heard from so many after a medical diagnosis of any kind, but certainly felt after a diagnosis of a rare disease like vasculitis.  This article will focus on the patient who feels alone after receiving this type of diagnosis because in the case…...