Extraordinary Patients

Support Groups, Family Help Ease Long Journey with Rare Urticarial Vasculitis

For Richard Kujawa, attending the 2019 International Vasculitis Symposium in Bloomington, Minnesota, during July was a chance to learn more about urticarial vasculitis, the rare disease he was diagnosed with in recent years. But he got something else he wasn’t expecting: a connection with someone who has the same disease.…...

Read more

Share Your Story

Are you a patient with a story to share? The VF would like to hear from you. Visit our Share Your Story webpage and fill out / submit the form to the VF....

Read more

Julia Metraux – Following Urticarial Vasculitis Diagnosis, Student Becomes Vasculitis Foundation Intern

Julia Metraux’s college plans were derailed in October 2016 after she developed an onset of symptoms that began as annoyances and then became dangerous. “I was eighteen years old and in my second month at McGill University,” Julia recalled....

Read more