Patients with vasculitis and their families may find it helpful to talk to a counselor or therapist to sort out the variety of feelings that can come with a diagnosis. Some may have a hard time accepting the disease; others may feel anxiety, anger, fear, sadness or even guilt about…...
Living with Kawasaki Disease Brings Out Strength, Hope and Resilience
For Nicol Jackson, one particular incident stands out as a stark reminder of how rarely some doctors ever see a patient with vasculitis. Her 5-year-old son, Josh, who was being treated for Kawasaki disease, experienced severe chest pains. Nicol and her husband, Rob, rushed him to the emergency room at…...
Balancing School and Vasculitis: Perspectives from Students and Parents
Lori Larson and son, Matt Being a young adult with vasculitis is challenging enough, but trying to navigate through school while managing the illness demands extraordinary skills. We asked a cross-section of young adult patients (and some parents) how they found the balance between health and academics. “One of the…...
Support Groups, Family Help Ease Long Journey with Rare Urticarial Vasculitis
For Richard Kujawa, attending the 2019 International Vasculitis Symposium in Bloomington, Minnesota, during July was a chance to learn more about urticarial vasculitis, the rare disease he was diagnosed with in recent years. But he got something else he wasn’t expecting: a connection with someone who has the same disease.…...
