Extraordinary Patients

Alison Fairchild

“You’ll never find rainbows if you’re looking down.” -Charlie Chaplin People choose different moments to reflect on their life with vasculitis. On the eve of my Swiss doctor’s retirement, I felt like it was my turn to write. I have been fighting and adapting to my particular bedmate, Wegener’s granulomatosis…...

Read more

Harrison Whetzel – High School Athlete Swims While Managing GPA/Wegener’s

The Whetzel Family l-r: Harrison,Caroline, Amy and Doug Fourteen-year-old Harrison Whetzel is an accomplished high school swimmer from Charlotte, North Carolina. He was diagnosed with GPA/Wegener’s in November 2015. Over the past 18 months, Harrison has fought through four different sinus surgeries and had tubes put in his ears and…...

Read more

Anna Fieldsend – British Woman Blogs About Her GPA/Wegener’s Journey

For Anna Fieldsend, the initial symptoms couldn’t have come at a worse time. At 19 years-old, Anna was in peak physical condition as she prepared for a career as a linguist in the British Military’s Intelligence Corps. “We thought it was chronic sinusitis but the symptoms kept getting worse. I’m…...

Read more

Wisdom of a Ferocious Patient Advocate: Celeste Benedict Castillo Lee (1965 – 2017)

Celeste Lee – a cherished wife, sister, daughter, and mother, faithful friend, and passionate patient advocate, passed away on February 9 at age 51. Celeste was a longtime member of the Vasculitis Foundation and a founding member of the North Carolina Vasculitis Foundation Support Group. At the age of 17…...

Read more