Extraordinary Patients

Brandon Hudgins – Olympics Hopeful’s New Book Tells Story of Going the Distance with Vasculitis

I recently sat down with fellow Vasculitis Foundation Ambassador Brandon Hudgins to talk about life after the Vasculitis Symposium, and more importantly, to talk about his new book “Going the Distance” — now available for purchase on Amazon for Kindle and in paperback. Ben: So, it’s been awhile since we…...

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Alison Fairchild

“You’ll never find rainbows if you’re looking down.” -Charlie Chaplin People choose different moments to reflect on their life with vasculitis. On the eve of my Swiss doctor’s retirement, I felt like it was my turn to write. I have been fighting and adapting to my particular bedmate, Wegener’s granulomatosis…...

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Harrison Whetzel – High School Athlete Swims While Managing GPA/Wegener’s

The Whetzel Family l-r: Harrison,Caroline, Amy and Doug Fourteen-year-old Harrison Whetzel is an accomplished high school swimmer from Charlotte, North Carolina. He was diagnosed with GPA/Wegener’s in November 2015. Over the past 18 months, Harrison has fought through four different sinus surgeries and had tubes put in his ears and…...

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Anna Fieldsend – British Woman Blogs About Her GPA/Wegener’s Journey

For Anna Fieldsend, the initial symptoms couldn’t have come at a worse time. At 19 years-old, Anna was in peak physical condition as she prepared for a career as a linguist in the British Military’s Intelligence Corps. “We thought it was chronic sinusitis but the symptoms kept getting worse. I’m…...

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Takayasu’s Patient Desiree Kim Invites Vasculitis Patients to Consider Qigong

Are you a warrior? No doubt, you are. We are all unique warriors, on this journey of journeys with a vasculitis diagnosis. The kind of warriors that despite pain, scars, and drudging, we keep going, keep fighting, keep living. Yet, at times, on this mountainous journey we feel powerless, defeated…...

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