Extraordinary Patients

Drifa Alfreosdottir and Maria Bjork Vioarsdottir – The Challenges Of Living with Vasculitis in Iceland

L – R: Drifa Alfreosdottir, and Maria Bjork Vioarsdottir. Drifa and Maria met with Ed Becker, VF Director of Marketing and Communications in August. Although Drifa has known Ed since 2002 when she joined his Polyarteritis Nodosa Support Network, this was the first time they met in person. Having a…...

Read more

Brandon Hudgins – Olympics Hopeful’s New Book Tells Story of Going the Distance with Vasculitis

I recently sat down with fellow Vasculitis Foundation Ambassador Brandon Hudgins to talk about life after the Vasculitis Symposium, and more importantly, to talk about his new book “Going the Distance” — now available for purchase on Amazon for Kindle and in paperback. Ben: So, it’s been awhile since we…...

Read more

Alison Fairchild

“You’ll never find rainbows if you’re looking down.” -Charlie Chaplin People choose different moments to reflect on their life with vasculitis. On the eve of my Swiss doctor’s retirement, I felt like it was my turn to write. I have been fighting and adapting to my particular bedmate, Wegener’s granulomatosis…...

Read more

Harrison Whetzel – High School Athlete Swims While Managing GPA/Wegener’s

The Whetzel Family l-r: Harrison,Caroline, Amy and Doug Fourteen-year-old Harrison Whetzel is an accomplished high school swimmer from Charlotte, North Carolina. He was diagnosed with GPA/Wegener’s in November 2015. Over the past 18 months, Harrison has fought through four different sinus surgeries and had tubes put in his ears and…...

Read more

Anna Fieldsend – British Woman Blogs About Her GPA/Wegener’s Journey

For Anna Fieldsend, the initial symptoms couldn’t have come at a worse time. At 19 years-old, Anna was in peak physical condition as she prepared for a career as a linguist in the British Military’s Intelligence Corps. “We thought it was chronic sinusitis but the symptoms kept getting worse. I’m…...

Read more