Extraordinary Patients

Jake Kula – Athlete With Vasculitis Considering Career in Medical Research

With May signifying Vasculitis Awareness Month, it is as great a time as any to look at those in our community who are making a difference in raising awareness about vasculitis. In this young adult patient profile, I had the pleasure of meeting a bright college student well on his…...

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Suzanne DePaolis – To the Friends Who Offer ‘Cures’ for My Chronic Illness

Sometimes, a simple chat with my friends and family can turn into a conversation about me defending my health choices. People will insist on telling me ways to boost my immune system....

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Marianne Vennitti – Former Fitness Professional Diagnosed with Cryoglobulinemia Now in Remission

In 1998, Marianne Vennitti, a Cherry Hill, New Jersey wife, mother, and fitness professional, suddenly started experiencing a rash of unusual symptoms—chronic fatigue, body pain, and even mental confusion. When she sought medical help, doctors considered a wide variety of possibilities including fibromyalgia and Lyme disease. Unfortunately, none of the…...

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Stephanie Sakson – A Vasculitis Patient’s Journey Through Diagnosis and Treatment to a Normal Life

One day in October 2009, Brittany Sakson came home from high school sick with the H1N1 influenza, commonly known as swine flu. In the days that followed, Brittany’s mother Stephanie, caught the flu as well. Although her symptoms weren’t as severe, they continued for several months. After numerous doctor visits,…...

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Ximena Romo Quintana – Raising Awareness and Impacting the Health Care System in Chile through Fundación Vasculitis Chile

Ximena Romo Quintana is leading the Fundación Vasculitis Chile’s campaign to improve early diagnosis of vasculitis in Chile. My name is Ximena Romo Quintana. I was born in Concepción, which is 500 kilometers south of Santiago, the capital of Chile, and where I have lived since 1988. I studied at…...

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