Extraordinary Patients

Eileen Radziunas – Author Chronicles Search for Answers in New Book “Prognosis for Misdiagnosis”

The reason why Eileen Radziunas wrote a book about her struggle with Behcet’s is almost as powerful as her story itself. Initially she simply wanted to keep notes about her condition because she didn’t know if she would survive the disease. “I started out with no intention of writing a…...

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Katrina Bargender – Young Patient Inspired by Other Achievers with Vasculitis Completes Kids’ Triathlon

Diagnosed with Takayasu’s arteritis in March 2016 and faced with enormous obstacles on her road to recovery, Katrina Bargender, a high school senior from Racine, Wisconsin, attended the 2017 International Vasculitis Symposium in Chicago, which was the turning point in her vasculitis battle....

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Brandon Hudgins – Victory Over Vasculitis Update: Brandon Battles Back

On a hot, muggy evening in July, Brandon Hudgins competed in the Liberty Mile in Pittsburgh, Pennsylvania, and finished third, ahead of one longtime rival, but behind two others. “My times weren’t very fast due to the sweltering conditions,” Brandon recalled, “but the effort was there. I fought off many…...

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Julia Metraux – Following Urticarial Vasculitis Diagnosis, Student Becomes Vasculitis Foundation Intern

Julia Metraux’s college plans were derailed in October 2016 after she developed an onset of symptoms that began as annoyances and then became dangerous. “I was eighteen years old and in my second month at McGill University,” Julia recalled....

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Jonelle Martin – Diagnosis Fuels Her Passion to Help Others with Central Nervous System (CNS) Vasculitis

Jonelle Martin’s diagnosis motivated her to create a Facebook group for other patients with CNS. By her own definition, Jonelle Martin calls herself a survivor of central nervous system vasculitis. That term has even greater power considering that when she was diagnosed there were rumors among some of her friends…...

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