Extraordinary Patients

Brandon Hudgins Sets His Sights on U.S. Olympic Team Trials in 2020

Most days, professional distance runner Brandon Hudgins wakes up with a burning desire to reach the goals he’s dreamed of since he was 15 years old. But there have been days when the obstacles seemed insurmountable. At one point, in 2013, he quit running entirely and threw his gear in…...

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Living with Kawasaki Disease Brings Out Strength, Hope and Resilience

For Nicol Jackson, one particular incident stands out as a stark reminder of how rarely some doctors ever see a patient with vasculitis. Her 5-year-old son, Josh, who was being treated for Kawasaki disease, experienced severe chest pains. Nicol and her husband, Rob, rushed him to the emergency room at…...

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Balancing School and Vasculitis: Perspectives from Students and Parents

Lori Larson and son, Matt Being a young adult with vasculitis is challenging enough, but trying to navigate through school while managing the illness demands extraordinary skills. We asked a cross-section of young adult patients (and some parents) how they found the balance between health and academics. “One of the…...

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Support Groups, Family Help Ease Long Journey with Rare Urticarial Vasculitis

For Richard Kujawa, attending the 2019 International Vasculitis Symposium in Bloomington, Minnesota, during July was a chance to learn more about urticarial vasculitis, the rare disease he was diagnosed with in recent years. But he got something else he wasn’t expecting: a connection with someone who has the same disease.…...

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