Extraordinary Patients

A Family’s Personal Journey Through Vasculitis

In life we often find that while not every story has a happy ending, we can learn from others’ experiences and hold on to hope. In the context of the vasculitis journey, we can hope for an early diagnosis, better treatments, advanced research and, ultimately, raise awareness. This is the…...

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Pinochle Night Brings Friends Together During Pandemic

By Fran Crotty My 85 year old mother splits her time between living at her Florida condo in the cool months and her Long Island, New York condo in the warm months. When in Florida, she plays in several bridge games each week. My brothers and sister have always been…...

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VF Board of Directors Welcomes Caz Cazanov

In March 2019 we published a story about Caz Cazanov and her personal experience with vasculitis. After being diagnosed with eosinophilic granulomatosis with polyangiitis (EGPA) in 2017, Caz was treated with high-dose steroids and cyclophosphamide infusions, and spent three weeks in the hospital and in a multidisciplinary rehabilitation facility. She…...

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Fran Crotty’s Morning Routine: Prepare Inner Self to Create a Positive Start for the day

In April 2020, the VF ran an article about Fran Crotty, who was diagnosed in 1996 with granulomatosis with polyangiitis (GPA) and Crohn’s disease. Fran has managed to stay in remission for almost two decades and in the April article, she describes how faith and positivity have fueled her personal…...

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For Yanique, it’s About Holding on to Hope

Yanique was just 9 years old when she was diagnosed with central nervous system (CNS) vasculitis—a rare inflammatory blood vessel disorder of the brain and spinal cord, which make up the central nervous system. It’s a serious condition in which the inflamed vessels can block the flow of oxygen to…...

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