Disease Names

YouTube Extraordinary Patient Video Stories – Behcet’s

The VF YouTube Awareness Channel was created in 2011 and features videos of patients, family members and caregivers sharing their experiences living with vasculitis. These 6-8 minute videos are done in a Q&A style allowing individuals to share their personal accounts detailing not only the impact of the disease on…...

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Cryoglobulinemia (video) featuring Dr. Antonietta M. Gatti

Cryoglobulinemia (video) featuring Dr. Antonietta M. Gatti...

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YouTube Education Videos produced by Alliance for Cryoglobulinemia

Cryoglobulinemia Simulation:  A simulation of the behavior of Cryoglobulins in blood as it cools. Artwork by Amy O’Hanlon. Cryoglobulinemia Explained:  Paul Monach, M.D., Director of the Boston University Vasculitis Center answers questions regarding Cryoglobulinemia and Vasculitis. Sponsored by Propp Solutions. Videos produced by Alliance for Cryoglobulinemia....

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Patient Information Book

The Patient Information Book includes general information on vasculitis, the individual diseases, medications, tips for managing the disease and other resources.  Click here to download the Patient Information Book....

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American Thoracic Society Information

The American Thoracic Society (ATS) has excellent information on various breathing issues and lung issues.  This is a valuable resource for patients who have been diagnosed with Granulomatosis with polyangiitis (GPA/Wegener’s), Eosinophillic granulomatosis with polyangiitis (Churg-Strauss syndrome), Polyarteritis nodosa and Microscopic polyangiitis.  This information is offered in English and Spanish....

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