Advocacy Groups

The foundation was founded in the memory of Ricardo, who passed away at age 32 of complications from vasculitis. The foundation organizes awareness and fundraising events to increase understanding of vasculitis in Jamaica. For more information please email Olive Creary....

The PAN Support Network 2012 (PSN) is a not-for-profit organization with more than 700 members world-wide. Patients, caregivers, physicians, research specialists provide invaluable education and support through a mailing list, live chat sessions, and other web resources.  Visit their website....

NORD is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services.  Visit their website....

The assignment of the German Vaskulitis Support Group has been and will be to give the necessary support to patients and their relatives to enable them to cope with the serious diagnosis. Exchange among affected people, for example in regionally established groups, is tremendously important, because a vasculitis-patient will usually…...

The Vasculitis Foundation is an organization of and for patients with primary vasculitis, their carers and other relatives. In addition, it wants to be a source of information for healthcare professionals and other interested parties. Visit their website....