Advocacy Groups

The Polyarteritis Nodosa Support Network (PSN)

The PAN Support Network 2012 (PSN) is a not-for-profit organization with more than 700 members world-wide. Patients, caregivers, physicians, research specialists provide invaluable education and support through a mailing list, live chat sessions, and other web resources.  Visit their website....

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National Organization of Rare Diseases (NORD)

NORD is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services.  Visit their website....

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German Vaskulitis Patient Group (Germany)

The assignment of the German Vaskulitis Support Group has been and will be to give the necessary support to patients and their relatives to enable them to cope with the serious diagnosis. Exchange among affected people, for example in regionally established groups, is tremendously important, because a vasculitis-patient will usually…...

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Friedrich Wegener Society – FWS (The Netherlands)

The FWS is the organization of and for patients with primary vasculitis in The Netherlands. In addition, it offers support to relatives, friends and acquaintances of the patient and is a source of information for those interested.  Visit their website....

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American Behcet’s Disease Association (ABDA)

ABDA’s mission is to provide support and information to people with Behçet’s and their families and to educate the medical community about the disease. Through education, support, research and fundraising, the ABDA is working to find a cure and to promote awareness and understanding of Behçet’s.  Visit their website....

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