Advocacy Groups

The Cryoglobulinemia Vasculitis Organization (CVO)

The mission of CVO is to champion advocacy programs regarding the care, treatment, research, diagnosis AND the use of service dogs for those suffering from cryoglobulinemia and associated conditions. CVO was established to unite patients and the medical community in managing and drawing attention to cryoglobulinemia, a rare blood disease that…...

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Vasculitis United Kingdom

Formerly the Stuart Strange Vasculitis Trust, the Vasculitis UK membership consists of a national network of support groups, helping the Trust to achieve its aims, offering support to sufferers, their families and friends both at home and abroad.  Visit their website....

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Vasculitis Foundation Canada

Vasculitis Foundation Canada is a not-for-profit Canadian Corporation. It evolved in 2008 from Wegener’s Granulomatosis Support Group of Canada which was established in 1998. This group is made up of patients, families and care-givers for 15 vasculidities. Our main purpose of patient support extends into avenues such as education and…...

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The Lauren Currie Twilight Foundation (LCTF) – Scotland

The LCTF was established in October 2010 in the memory of Lauren Currie who died from Vasculitis and specifically the rare condition, Wegener’s Granulomatosis (GPA) at the age of 15. The Foundation is  committed and focused on the following objectives:  To raise and maintain a national awareness of vasculitis; to…...

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The Ricardo Lee Vasculitis Foundation (Jamaica)

The foundation was founded in the memory of Ricardo, who passed away at age 32 of complications from vasculitis. The foundation organizes awareness and fundraising events to increase understanding of vasculitis in Jamaica. For more information please email Olive Creary....

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