Advocacy Groups

European EGPA Study Group

The European EGPA Study Group was established in 2018 with the intention to create a network of scientists and clinicians from European EGPA referral centers, gathering clinical and scientific excellence and expertise to promote collaborative clinical and translational studies, to enhance knowledge about the disease, and to develop new recommendations…...

Read more

Rheumatoid Arthritis Support Network (RASN)

We’re a team of healthcare writers and professionals who are committed to helping people with rheumatoid arthritis live full, happy lives despite their diagnosis. 121 S. Orange Ave, Orlando, Florida  32801 Email or 877.284.0235...

Read more

Wegener Infos Et Autres Vascularites (France)

Nous avons organisé une trentaine de réunions publiques d’informations sur nos maladies rares, dans les divers Centres Hospitaliers de France, qui ont réuni environ 2.000 auditeurs. Les intervenants tous spécialistes membres du GFEV (Groupe Français d’Etudes des Vascularites) furent au nombre de 52. Nous avons pu compter sur l’aide très…...

Read more

Kawasaki Disease Foundation

The Kawasaki Disease Foundation is partnership of parents, patients, and professionals dedicated to advancing Kawasaki Disease issues. The Foundation focuses on awareness, support, and research.  Visit their website....

Read more

West Country Support Group (England)

For more information on the West Country Support Group please contact Charlotte Stoner....

Read more