We are a team of patients with vasculitis, caregivers, researchers, data specialists, and providers on a daily mission to share and learn from one another with a vision for the future in clinical vasculitis research.

Our vision is to improve the health of vasculitis patients by developing early-diagnosis methods, discovering more effective treatments, and finding cures. We are inviting thousands of patients with vasculitis, and caregivers, to come together to learn more about symptoms, share experiences, and to become a part of a research network to improve lives.

It is a whole new way of finding answers for the questions most important to YOU and other patients living with vasculitis.

Our Team

  • DianneShaw

    Dianne Shaw

    VPPRN co-Principal Investigator Dianne Gooch Shaw was diagnosed with GPA in 1995. She is a past Board member and president…...

  • Peter Merkel

    Peter A. Merkel, MD, MPH

    Dr. Merkel, a rheumatologist, is the Principal Investigator of the Vasculitis Clinical Research Consortium. He is a Professor of Medicine…...

        • Joyce Kullman

          Joyce A. Kullman

          Joyce Kullman began volunteering with the Vasculitis Foundation (then the Wegener’s Granulomatosis Support Group) in 1995, and became executive director…...

        • Kalen Young

          Kalen Young

          Kalen Young, Director of Research Affairs Vasculitis Patient-Powered Research Network (VPPRN) Kalen has served the VPPRN since 2014 first as…...

        • Dr. Springer 07_21_2019 - 5 inches

          Jason M. Springer, MD

          Jason M. Springer, MD · Director, University of Kansas Vasculitis Clinic, Kansas City, Kansas. Dr. Springer is the chair of…...

        • Tanaz-Kermani (2)

          Tanaz A. Kermani, MD, MS

          Tanaz A. Kermani, MD, MS is a physician who specializes in vasculitis at the University of California, Los Angeles. Dr.…...

        • Pagnoux photo (2)

          Christian Pagnoux, MD, MPH, MSc

          Christian Pagnoux, MD, MPH, MSc is an Associate Professor at the University of Toronto/Mount Sinai Hospital and an experienced member…...

        • grayson-peter-profile_1 (2)

          Peter C. Grayson, MD, MSc

          Peter C. Grayson, MD, MSc is the principal investigator of the NIAMS Vasculitis Translational Research Program.  Dr. Grayson is a…...