VCRC-VPPRN EGPA Registry
The VCRC-VPPRN EGPA Registry is an extension of the Vasculitis Patient-Powered Research Network(VPPRN) and is hosted online in the VPPRN secure patient portal.
The Vasculitis Clinical Research Consortium (VCRC) and the Vasculitis Patient-Powered Research Network (VPPRN) are an integrated group of academic medical centers, patient support organizations, online research registry, and clinical research resources dedicated to conducting clinical research in vasculitis.
Who We Are
We are a team of patients with EGPA and other forms of vasculitis, caregivers, researchers, data specialists, and providers on a daily mission to share and learn from one another with a vision for the future in clinical vasculitis research.
Already a member of the VPPRN?
Congratulations, you are already powering EGPA research! As a member of the VPPRN, you have shared your disease experience by providing self-reported data through our online surveys. The collection of EGPA specific surveys is also referred to as the “EGPA Registry”. We ask that you continue to check-in to your secure VPPRN portal and continue this important work but now with questions that will capture a more in-depth picture of your disease experience.
Questions and Study Contact
Please note, our research team is here to make participation in this study easy for you. The study coordinator is available for you to contact if you have any questions or concerns. Contact the Study Team at [email protected] if you have questions about the study.
The VCRC-VPPRN EGPA Registry Is Supported in Part by GlaxoSmithKline
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