Autoimmune Research Collaborative

A Patient-Investigator Partnership 

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The Autoimmune Research Collaborative (ARC) advances patient-centered outcomes research, and comparative effectiveness and pragmatic research, in autoimmune and systemic inflammatory diseases. 

ARC, formerly known as the Autoimmune and Systemic Inflammatory Syndromes Collaborative Research Group (ASIS CRG), initially formed within PCORnet®, the National Patient-Centered Clinical Research Network.

Who We Are

ARC is comprised of four Patient-Powered Research Networks (PPRNs) working together to conduct patient-centered research in adult autoimmune conditions: the Vasculitis Patient-Powered Research Network, the ArthritisPower® Research Registry, and IBD PartnersiConquerMS™.

Patient Organizations and Academic Institutions

Individual ARC networks are supported and coordinated by patient organizations including Vasculitis Foundation, Accelerated Cure Project, CreakyJoints, Crohn’s & Colitis Foundation, and affiliated academic institutions including the University of Alabama at Birmingham, the University of North Carolina at Chapel Hill and the University of Pennsylvania.

Effective Research Collaboration

The  Autoimmune Research Collaborative (ARC) collaborates with stakeholders including patients, caregivers, advocacy groups, providers, and funders early on to move research forward more quickly and more efficiently by:

    • identifying and prioritizing research questions of high importance.
    • developing approaches for using electronic data to address unmet research needs in prevention, diagnosis, treatment, and outcomes of autoimmune and inflammatory conditions.
    • promoting and facilitating patient participation in clinical research.
    • reduce disparities in access to treatment and participation in research for these diseases.