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VPPRN Patient-Powered Research

Microscopic Polyangiitis (MPA)

Every 6 months, we ask our VPPRN community to check-in and tell us how they are doing.  The graphs below reflect the scores/ratings of patients with microscopic polyangiitis (MPA) compared to the Network as a whole.  Here is what we learned about flares, fatigue, pain, symptoms of vasculitis, and members’ current state of vasculitis at the January 2026 check-in:

    • Compared to patients with other forms of vasculitis, patients with MPA reported the following:
      • less flares reported 
      • similar scores for fatigue
      • higher percentage of patients with GCA reporting no symptoms over the past 28 days
      • similar scores for pain 
      • a smaller percentage of patients with MPA reported their vasculitis as currently active.

If you have concerns about your health scores, please discuss with your rheumatologist or primary care provider.  

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FLARES and VASCULITIS

Flare Reporting: Patients with MPA reported less flares than the VPPRN community at the January 2026 check-in.  11% of patients with MPA reported a flare in the past 6 months, compared with 21% of participants across the overall Network.

Patients with MPA

Entire VPPRN Community

FATIGUE and VASCULITIS

Fatigue: Fatigue was common among patients with MPA, with rates similar to the broader VPPRN community. At the January 2026 check-in, 84% reported experiencing fatigue in the past 7 days, compared with 87% across the Network.

Patients with MPA

Entire VPPRN Community

SYMPTOMS of VASCULITIS

Symptoms of Vasculitis: At the January 2026 check-in, patients with MPA scored their symptoms of vasculitis lower over the past 28 days.  31% of patients with MPA reported no symptoms of vasculitis, compared to 23% in the VPPRN community.

Patients with MPA

Entire VPPRN Community

PAIN and VASCULITIS

Pain: Patients with MPA reported pain levels similar to those seen across the VPPRN community. At the January 2026 check-in, 30% of patients with MPA reported no pain (score = 0) on average.  This is similar to the 28% who reported no pain in the Network.

Patients with MPA

Entire VPPRN Community

MEMBERS' CURRENT STATE OF VASCULITIS

Members’ Current State of Vasculitis: Patients with MPA reported active disease at rates similar to the overall VPPRN community. At the January 2026 check-in, 16% reported their vasculitis as active, compared with 21% of participants across the Network.

Patients with MPA

Entire VPPRN Community

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This GivingTuesday, December 1, your donation will be matched up to $35,000!

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Together, we can:

Train tomorrow’s vasculitis specialists

Support patients and families

Drive research for better treatments

YOUR GIFT GOES TWICE AS FAR TODAY!

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