VF in the News

Jessica’s Story

Jeanne and John are members of the Education Awareness Council representing Takayasu’s arteritis. Their daughter, Jessica, was only 14 months old when she began to have troubling symptoms that would later prove to be Takayasu’s arteritis. Jessica developed unexplainable high fevers, ear infections, and respiratory problems including asthma. She had tubes put in…...

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Andrew’s Story

Andrew is a member of the Education Awareness Council and represents Central Nervous System vasculitis, which he was diagnosed with in 2001 at the age of 58.  During his working years, Andrew was president and co-owner of a small plastic molding company in Cleveland, Ohio. He is now retired and…...

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Ken’s Story

My name is Ken. I’m better now, but I spent 12 months battling Churg Strauss Syndrome. I’m telling my story below in the hope that it will be helpful to others going through the same thing. Of course, these are just my personal recollections, they are not intended in any…...

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Joanne’s Story

Riding the Behcet’s Roller Coaster My name is Joanne.  When you’re 23, fresh out of college and just starting your first real job, you think that you have your whole wonderful life ahead of you. You have your friends, your boyfriend, a job that you like, your first car, and a cheap…...

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Grace’s Story

My name is Grace. “Wegener’s granulomatosis” (WG) the excited medical student exclaimed, you’re lucky to see a couple cases in your career and this is my first week. As a registered nurse of nearly 30 years, I never heard of WG and now was the patient being spoken about. My family…...

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