VF in the News

Steve’s Story

Zest For Life My name is Steve and I was diagnosed with PAN in December 2004 by a radiologist after having a renal arteriogram. My symptoms started in August 1998, when I went to the hospital while on a business trip with what they thought were kidney stones. Over the next…...

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Rhonda’s Story

Beating The Odds My name is Rhonda. People beat the odds all the time, so there’s no reason why we can’t be among them. Still, the most useful advice I received as a patient pertained to the prednisone. A friend who is a lab supervisor for a pharmaceutical company told me, “Always…...

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Ed’s Story

A Profile of Ed  We peppered the doctor with questions about a disease that was a total mystery to us. What does PAN mean? What is it doing to her body? How do you treat a PAN patient? How did she get it? What’s the life expectancy of a PAN patient?…...

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Cindy’s Story

Wrestling The Unknown My name is Cindy. For the first 43 years of my life I was “boring” from a medical perspective. I worked out regularly and had no real medical history. I was neither underweight, nor overweight. I worked out regularly and had no real medical history. In fact, my visits…...

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Myrna’s Story

Hoping And Coping My name is Myrna. I am 54 years old, a mother of two sons and one honorary daughter and a grandmother. I teach little kids to speak French, publish literary fiction and poetry, direct a choir, sing and travel a lot. I have had to give up figure…...

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