How many times have you said to yourself that your experience with vasculitis would be a powerful article, or even a book? How do you begin the process of self-publishing your story? What online venues might feature your article?
You’ll get those answers in this exclusive webinar featuring a conversation with Sarah Schuster, Editorial Director with the online publication, The Mighty. She will give you tips and ideas on how to capture and share your experience in a way that captures readers’ interest.
You will also learn the amazing story of Kris Kelbrants whose CNS vasculitis left her with gaps in her memory as she struggled with the disease. Her mother, Sherry Shuss, kept detailed notes and journal entries throughout her daughter’s treatment and rehabilitation. They decided to write and publish a book, Maze of Thorns, not only to share with the public, but also as a way for Kris herself to understand what she experienced–but doesn’t remember.
Find out the challenges and solutions in writing, editing, and sharing your own story to a worldwide audience through self-publishing.
Writing, Editing, Publishing and Promoting Your Story
No doubt, that Brandon Hudgins has an extraordinary story to tell. However, he quickly learned the process of capturing, writing, and publishing that story was not an easy one. Brandon teamed up with professional communications consultant, John Fries, and the two of them became a creative collaborative team that resulted in a self-published book on Amazon.
In this inspiring webinar, John and Brandon explain their challenges, solutions, and tips on creating a book from scratch to having it published to a worldwide audience.
In addition, you will learn how you can raise awareness about vasculitis by publishing your story through the local media.
Preparing for an interview
Beth Howe has done several media interviews to raise awareness about vasculitis. In this short webinar, Beth shares advice on how to best tell your patient story should you have the chance to be interviewed on radio and TV.
How I turned my personal notes into a published book
Eileen Radziunas kept a journal and notes detailing her experience of trying to get a diagnosis for her symptoms. After getting a diagnosis of Behcet’s Disease, Eileen turned those notes and journal entries into a self-published book intended to help other patients understand the challenges she encountered.
In this webinar, Eileen talks about the three most important lessons she learned about the process of self-publishing one’s story. Her candid, inspiring advice will hopefully inspire other patients to write and publish their own story.
